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PAN Forum Summary Part 2:
Tuesday Afternoon  - Federal Programs Supporting Parkinson's Research.
Presentors included:
Lt.Col. Karl Friedl, U.S. Army Medical Research and Materiel Command,
spoke about the Department of Defense's Neutotoxin Exposure Treatment
Research Program (NETRP). Research is conducted on the environmental
causes of neurological diseases such a Parkinson's and Gulf War Syndrome
with the goal of advancing research on diagnosis and treatment of
Parkinson’s, studying ways to prevent and reduce the risk of military
exposure to toxins that may cause neurological disorders.  Increasing
federal funding for this highly praised program from $21 million to $50
million for FY04 is one of PAN's legislative goals for this year.

Dr. Diane Murphy:- Program Director of  NIH Neurodegeneration Group,
spoke about a new approach to planning, prioritzing and evaluating
Parkinson's research at the NIH-  called "The Matrix" . See more about
this at :  http://www.ninds.nih.gov/parkinsonsweb/matrix.htm
She also spoke about new efforts to coordinate PD research taking place
at a number of different agencies such as the NIH, VA, FDA, as well as
research funded by the voluntary organizations,  and to coordinate
worldwide PD research data . The NIH will be extending its program from
mainly basic science research to include translational research -
applying the basic science research to develop new treatments and
interventions -  taking the research "from bench to bedside."

Dr. Bernard Ravina  - Director in the Clinical Trials Cluster (NINDS)
spoke on a series of coordinated neuroprotection trials that will be
conducted at a number of research centers across the US - to identify and
compare the  effectiveness of 12 possible neuroprotective substances.  It
is expected 3000 patients will take part. PD patients who have been
diagnosed within 5 years and who are not yet taking medications are
eligible to enroll. For more information call 1-800-352-9424.

Again it seemed just about every speaker talked about the importance of
collaboration and coordination for moving the research forward - between
researchers, federal agencies, voluntary organizations and Parkinson's
patients.

Linda

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