I will also give my views just below the questions.
Good luck - Harlan Ussher, Australia.
----- Original Message -----
From: "brightline" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, July 22, 2003 7:24 AM
Subject: Re: Help with a new PDF publication for Parkinson's Disease
> I am giving my views just below the questions:
> ----- Original Message -----
> From: "Lucy Sargent" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Monday, July 21, 2003 2:42 PM
> Subject: Help with a new PDF publication for Parkinson's Disease
> > The Parkinson's Disease Foundation (PDF) is launching a new booklet for
> the mid-stage Parkinson's patient and we are asking if you can help us by
> answering a few questions outlined below.
> >
> > This booklet is intended to be a practical guide on coping with PD at
the
> stage of the disease when it begins to interfere with everyday living
> activities. We hope to provide readers with advice and tips on day-to-day
> coping. The publication will be widely available and free of charge.
> >
> > We would be very grateful if you could share your thoughts with us by
> answering the following questions:
> >
> > 1. What specific topics you would consider to be MOST helpful/useful in
> such a publication? e.g. dealing with depression, nutrition, exercise,
> adapting your home/surroundings etc.
> > A. Nutrition & nutritional supplements
> B. Exercise
> C. Sleep habbits
Answer: Dealing with depression
> > 2. In order of priority, what areas of day-to-day living does
Parkinson's
> most interfere with?
> A. Movement
> B. Getting up from the sitting position
> C. Writing
> D. Speaking
Answer: For me it was, at mid-stage, A.Coming to terms with the fluctuations
/
individuality of the symptons and the deteroration of the
quality of
Movement in general
3. What practical advice/tips help you manage your PD that you would be
> happy to share with others?
> I have so far been able to manage wihtout any prescription drugs.
> Supplements like Oral Reduced Glutathione, Acetyl-L-carnitine, Co En Q10,
> NADH, Lipoec Acid, halped me a lot in achieving this. I am also taking
> Ayurvedic medicine.
Answer: Develop a team approach that keeps one as independent as possible;
involve your family, friends, pharmacist, General Practioner,
etc.,etc.
Don't be afraid. Get to know your body. Learn about PD.
Be strong. Don't become a 'victim'. Keep your dignity.
Continue to /learn to laugh at yourself & at life in general.
> 4. What sort of resources would be useful to include?
> Benefits of nuritonal supplements and their modes of action
> Up to date info n the varius therapies available today.
> Various prescription drugs and their good and side effects .
> Various info links on PD and related disorders/
Answer: Any/all of the above. Information & knowledge Empowers.
> Your input will help us to shape the content and context of this
> publication. All comments are very gratefully received. If you would
prefer
> to telephone me to discuss your ideas, I would be delighted to hear from
> you - you can reach me on (800) 457 6676.
> With many thanks for your support of our work at The Parkinson's Disease
> Foundation.
> >
> > Yours sincerely,
> >
> > Lucy Sargent
> > Director of Communications
> > Parkinson's Disease Foundation
> > 710 West 168th Street
> > New York, NY 10032
> > Tel: (212) 923-4700
> > Fax: (212) 923-4778
> >
>
____________________________________________________________________________
> _________________________
> >
> > The Parkinson's Disease Foundation is dedicated to funding the highest
> caliber research into the causes and cure of Parkinson's.
> >
>
____________________________________________________________________________
> _________________________
> >
> >
> > ----------------------------------------------------------------------
> > To sign-off Parkinsn send a message to:
> mailto:[log in to unmask]
> > In the body of the message put: signoff parkinsn
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
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