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----- Original Message ----- From: "Lucy Sargent" <[log in to unmask]> To: <[log in to unmask]> Sent: Monday, July 21, 2003 10:42 AM Subject: Help with a new PDF publication for Parkinson's Disease > The Parkinson's Disease Foundation (PDF) is launching a new booklet for the mid-stage Parkinson's patient and we are asking if you can help us by answering a few questions outlined below. > > This booklet is intended to be a practical guide on coping with PD at the stage of the disease when it begins to interfere with everyday living activities. We hope to provide readers with advice and tips on day-to-day coping. The publication will be widely available and free of charge. > > We would be very grateful if you could share your thoughts with us by answering the following questions: > > 1. What specific topics you would consider to be MOST helpful/useful in such a publication? e.g. dealing with depression, nutrition, exercise, adapting your home/surroundings etc. ALL GOOD. BUT I'D SUGGEST EXERCISE, AND MAYBE "FREEZING". > > 2. In order of priority, what areas of day-to-day living does Parkinson's most interfere with? 1) WALKING 2) EMOTIONAL PROBLEMS > > 3. What practical advice/tips help you manage your PD that you would be happy to share with others? TAKE MEDS AS SCHEDULED. I USE NORTRIPTYLINE TO HELP WITH SLEEPING. > > 4. What sort of resources would be useful to include? INFORMATION ON ADVANTAGES AND DISADVANTAGES OF SPECIFIC MEDS. > > Your input will help us to shape the content and context of this publication. All comments are very gratefully received. If you would prefer to telephone me to discuss your ideas, I would be delighted to hear from you - you can reach me on (800) 457 6676. > > With many thanks for your support of our work at The Parkinson's Disease Foundation. > > Yours sincerely, > > Lucy Sargent > Director of Communications > Parkinson's Disease Foundation > 710 West 168th Street > New York, NY 10032 > Tel: (212) 923-4700 > Fax: (212) 923-4778 THANKS FOR THE GOOD WORK OF THE PARKINSON'S DISEASE FOUNDATION. MERV SWING > ____________________________________________________________________________ _________________________ > > The Parkinson's Disease Foundation is dedicated to funding the highest caliber research into the causes and cure of Parkinson's. > ____________________________________________________________________________ _________________________ > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn