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In science and medicine there is no cost of going public. I understand the need for some secrecy at some very early stage in the development of new drugs; however, once one enters the "preclinical" stages with the FDA, the whole thing should be a matter of public record, and be supported by some published preclinical research. Where is that? I am not asking for the secrets of how to manufacture the drug. Just the chemical class, and its putative actions and rationale for its efficacy Searching the FDA Center for Drug Evaluation and Research (CDER) I could find no mention of Parkinol, Latham, or Innovative Laboratories Why must access to Dr. Latham's credentials be only via third parties? How about a listing of his publications? His credential and publications are not secret, I assume. If one cannot confirm his credentials or his publications, then how can one rely on the information about this putative secret new drug? Again, I urge members of the Parkinsn List to exercise great caution. The greater the resistance and secrecy, the greater the need for caution. Jorge Romero, MD ----- Original Message ----- From: "Peggy Willocks" <[log in to unmask]> To: <[log in to unmask]> Sent: Wednesday, August 06, 2003 12:08 AM Subject: Re: In Search of a Cure > FYI > Ahhh the cost of going public! > --------------------------------- > > Dr. Romero > I had some of the same questions. I asked earlier and have received his > Bio. It is still impressive in my opinion. "Parkinol" has a pending patent, > thus, the secrecy. This compound is only in what one would consider > "pre-clinical trials." Dr. Latham has already been working with the FDA. > I am sure you will be hearing from him in the near future. > > I appreciate your concerns - this was a human interest report only. I hope > it leads to a cure, but we're nowhere ready to make such claims. The NBC > affiliate that picked up on the local announcement might have been > misleading in its report. And I in no way was endorsing his work - just > found it interesting to note the power of the internet and advocacy. > > Thank you for caring enough to want validation. We need more like you. > Peggy > > > ----- Original Message ----- > From: "Jorge Romero MD" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Tuesday, August 05, 2003 11:40 PM > Subject: Re: In Search of a Cure > > > > To Parkinsn List Members: > > > > I wrote the letter below to Dr. Latham at Innovative. So far I have > > received no reply. > > > > Jorge A. Romero, MD > > > > QUOTE OF LETTER: > > > > I am very interested in your research on Parkinol > > > > Yet, I am somewhat confused. I searched the Internet and found that a > > company named Nile Co. markets trihexyphenidyl under the name PARKINOL? > > > > Is this the same compound that Dr. Latham is researching? > > > > Why does your site not give any other information about Parkinol? The > class > > of drug, at the very least. Some references to preliminary work? > > > > I am very impressed by Dr. Latham's credentials, yet I am unable to verify > > them since you mention no institutions or affiliations for his educational > > or professional credentials. Are those available? > > > > Thank you very much for your replies. > > END QUOTE > > > > > > > > ----- Original Message ----- > > From: "Peggy Willocks" <[log in to unmask]> > > To: <[log in to unmask]> > > Sent: Friday, August 01, 2003 12:26 AM > > Subject: Re: In Search of a Cure > > > > > > > So true, Dr. Romero! I did the same PubMed searches - but he doesn't > say > > > his publications were in the journals covered by PubMed (it might have > > even > > > been "Reader's Digest!") > > > And I would really appreciate you or someone checking into his > > credentials. > > > I did make a personal visit to the lab - he is working on something with > > the > > > rats related to PD - and showed me evidence that the FDA had been > working > > > there reviewing his pre-clinical trials. > > > > > > I admit not much at the website, but we'll keep being detectives! > Thanks > > > for any help on this onel > > > > > > Peggy <*]]>< > > > "Where there is no vision, the people perish." > > > --Proverb > > > > > > > > > ----- Original Message ----- > > > From: "Jorge Romero MD" <[log in to unmask]> > > > To: <[log in to unmask]> > > > Sent: Friday, August 01, 2003 12:58 AM > > > Subject: Re: In Search of a Cure > > > > > > > > > > CAUTION: > > > > > > > > The site has no substance at all. It talks about Parkinol and about > Dr. > > > > Keith Latham. His credentials, disclosed in > > > > http://www.parkinsons-research.com/aboutdr.htm > > > > are vacuous. No institutions are mentioned for any of his degress or > > > > affiliations. > > > > > > > > A quick search of PubMed for articles published by Keith Latham yields > > > > absolutely nothing. > > > > > > > > Yet, there is a prominent link for DONATIONS.. > > > > > > > > A Google search for PARKINOL only circles back to that same site, or > > goes > > > to > > > > another site which sells PARKINOL = trihexyphenidyl made by Nile Co. > > > > > > > > As you folks may all recall, trihexyphenidyl is nothing but the old > > friend > > > > ARTANE, one of the first anticholinergic drugs used to treat PD. It > is > > > far > > > > from a cure. > > > > > > > > Does someone have other information on this drug? It sounds like a > hoax > > > or > > > > a scam. > > > > > > > > Jorge Romero, MD > > > > > > > > > > > > ----- Original Message ----- > > > > From: "Linda J Herman" <[log in to unmask]> > > > > To: <[log in to unmask]> > > > > Sent: Thursday, July 31, 2003 5:50 AM > > > > Subject: In Search of a Cure > > > > > > > > > > > > > Dear listmembers, > > > > > > > > > > Please see http://grassrootsconnection.com/klatham.htm > > > > > for an amazing article, also by Peggy Willocks, about the power of > > the > > > > > Internet and the power of the Parkinson's community in the "Search > > for > > > a > > > > > Cure" > > > > > > > > > > Linda > > > > > > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn