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Murray:

From the beginnings of this episode I have been amazed by the positive
attitude you have taken. Your cheerful, positive notes are a pleasure to
behold and certainly an example for others.

Keep it up.

And, You hear me:

            ***** B E   W E L L      ******

K. F. Etzold CG Carline




                      Murray Charters
                      <mcharters@novus-tel        To:       [log in to unmask]
                      e.net>                      cc:
                      Sent by:                    Subject:  Update Re: Houston, We Have A Problem...
                      "Parkinson's
                      Information Exchange
                      Network"
                      <[log in to unmask]
                      toronto.ca>


                      08/14/03 03:05 AM
                      Please respond to
                      mcharters






Mornin' All,

just a quick message to relay yesterday's happenings...

* * *

Brenda's and my day,
she was with me all the way.

We checked in at VGH Admitting around 12:00 Noon, Aug 13, 2003

I was there for a routine out-patient procedure -  thoracentesis -
(draining of the pleural effusion that is
restricting the capacity in my left lung).  I handed the admitting person
my wrist band from the previous week, my CARE
Card, and checked in in a few minutes, (they were expectin' me) and
proceeded down one floor to a Day Bed area just
down the hall from the Broncoscopy suite. Get yer duds off, put this skimpy
gown on backwards, old hat stuff!!  Wait
for the porter t' wheel ya down the hall...

Soon I was in the Broncoscopy suite, where I had a Broncoscopy last Thurs.,
for biopsy of the tumor found in the upper
lobe of my left lung.  Ahh.. there was a familiar face.  Anne hooked up the
ECG, applied the Blood Pressure Cuff, the
finger clip monitor, and tested the equipment... Old hat!  Ready t'
roll....

Dr. Ayas was to tap the pleural effusion on Wed. Aug. 13th. at 13:00
Hours...  He was late... 13 minutes... not that
I'm superstitious...

He intended to use a biopsy needle to drain 1 to 1.5 litres of fluid...
which would allow my lung to expand, restore
temporarily my lung capacity, possibly allow me to rest a bit easier and
get a decent sleep...

The  thoracentesis procedure also allows biopsy of the pleural effusion.

Dr. Ayas explained the procedure and I signed the consent form.

This was 'sposed t' be a quick outpatient procedure / roughly 1 hour plus 1
hour rest and observation, after which I
would return home.

They had me sit up, bend slightly forward over a bedside table.  He prepped
the area on my back, applied a local
freezing and got started. That's when Parkinson's showed up in the form of
hypotension... Suddenly I felt dizzy, my
blood pressure dropped, and my heart rate ticked down into the 30's...  I
had forgotten to warn them that I'd
experienced hypotension before... I was probably somewhat dehydrated as
well... fasting, fluids only from the night
before... I think I only had two glasses of water... one with each set of
Parkinson's meds... I'm sure I went pasty
white... almost passed out!

Now I needed an IV tap... and Oxygen... Sooooo ... lay back and relax, suck
up some Oxygen... IV tap in, wait....

About an hour late we resumed the thoracentesis procedure... Things were
still not going as planned... Dr. Ayas had
difficulty getting the fluid to drain... Finally we had about 750ml of
clear straw colored fluid... Not all that's in
there, but enough for today...

An imbalance between the venous-arterial pressure and the pressure within
the pleural space (oncotic pressure) causes
transudative effusions. Transudates contain few protein cells and little
solid material content and have a clear, pale
yellow color.

Dr. Ayas explains that this fluid looks fine under the circumstances.

In due course they wheeled me down the hall for a chest Xray to confirm
where we're at now... One from the front, one
from the left side... Okay... "Kodak" moments are finit..  Back to the day
bed area for rest and observation... It's
15:30 now...

I get apple juice and my Parkinson's meds at 16:00 right on time... (I have
my own meds and my 3 ring binder with me)

Dr. Ayas reappears around 16:40... He has seen the Radiologist, the Xray is
Ok. and I can be discharged.

Wait... Wait... we have a few questions... When will we be informed of the
results of this biopsy?  (perhaps Friday,
but more likely Monday)

If this biopsy is negative then is the 3 cm. (roughly) tumor in my lung the
primary cancer for sure? (the oncologist
will make that diagnosis)...

What do we call that tumor?  What type of cancer cells do I have so far?
(It is an "adenocarcinoma" probably in Stage
3A)

HHHhhhmmmmmmmmm....

adenocarcinoma, bronchiolo-alveolar
A carcinoma thought to be derived from epithelium of terminal bronchioles,
in which the neoplastic tissue extends along
the alveolar walls and grows in small masses within the alveoli.
Involvement may be uniformly diffuse and massive, or
nodular, or lobular. The neoplastic cells are cuboidal or columnar and form
papillary structures. Mucin may be
demonstrated in some of the cells and in the material in the alveoli, which
also includes denuded cells. Metastases in
regional lymph nodes, and in even more distant sites, are known to occur,
but are infrequent.
http://cancerweb.ncl.ac.uk/cgi-bin/omd?adenocarcinoma,+bronchiolo-alveolar

What's next? (Wait for this biopsy, consult with the Oncologist)

The IV comes out, the vital signs monitor is switched off, and I don my
street duds...

It's 17:00 hours...

I learned one small lesson... remember to think about Parkinson's and
hypotension when you have any hospital
"procedure"...

It is better to discuss this upfront and be fully prepared... (I had my 3
ring binder, we had briefly dicussed my meds,
but hadn't considered hypotension or dehydration...

I hope you all keep on smilin' and doin' your very best...

I am!

cheers ...... murray


* * *
Murray Charters <[log in to unmask]>
http://www.geocities.com/murraycharters/

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