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Jorge - You speak such wisdom. Jo Ann On Wed, 6 Aug 2003 22:32:49 -0500 Jorge Romero MD <[log in to unmask]> writes: > In science and medicine there is no cost of going public. > > I understand the need for some secrecy at some very early stage in > the > development of new drugs; however, once one enters the > "preclinical" stages > with the FDA, the whole thing should be a matter of public record, > and be > supported by some published preclinical research. Where is that? > > I am not asking for the secrets of how to manufacture the drug. > Just the > chemical class, and its putative actions and rationale for its > efficacy > > Searching the FDA Center for Drug Evaluation and Research (CDER) I > could > find no mention of Parkinol, Latham, or Innovative Laboratories > > Why must access to Dr. Latham's credentials be only via third > parties? How > about a listing of his publications? His credential and > publications are > not secret, I assume. > > If one cannot confirm his credentials or his publications, then how > can one > rely on the information about this putative secret new drug? > > Again, I urge members of the Parkinsn List to exercise great > caution. The > greater the resistance and secrecy, the greater the need for > caution. > > Jorge Romero, MD > > > ----- Original Message ----- > From: "Peggy Willocks" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Wednesday, August 06, 2003 12:08 AM > Subject: Re: In Search of a Cure > > > > FYI > > Ahhh the cost of going public! > > --------------------------------- > > > > Dr. Romero > > I had some of the same questions. I asked earlier and have > received his > > Bio. It is still impressive in my opinion. "Parkinol" has a > pending > patent, > > thus, the secrecy. This compound is only in what one would > consider > > "pre-clinical trials." Dr. Latham has already been working with > the FDA. > > I am sure you will be hearing from him in the near future. > > > > I appreciate your concerns - this was a human interest report > only. I > hope > > it leads to a cure, but we're nowhere ready to make such claims. > The NBC > > affiliate that picked up on the local announcement might have been > > misleading in its report. And I in no way was endorsing his work > - just > > found it interesting to note the power of the internet and > advocacy. > > > > Thank you for caring enough to want validation. We need more like > you. > > Peggy > > > > > > ----- Original Message ----- > > From: "Jorge Romero MD" <[log in to unmask]> > > To: <[log in to unmask]> > > Sent: Tuesday, August 05, 2003 11:40 PM > > Subject: Re: In Search of a Cure > > > > > > > To Parkinsn List Members: > > > > > > I wrote the letter below to Dr. Latham at Innovative. So far I > have > > > received no reply. > > > > > > Jorge A. Romero, MD > > > > > > QUOTE OF LETTER: > > > > > > I am very interested in your research on Parkinol > > > > > > Yet, I am somewhat confused. I searched the Internet and found > that a > > > company named Nile Co. markets trihexyphenidyl under the name > PARKINOL? > > > > > > Is this the same compound that Dr. Latham is researching? > > > > > > Why does your site not give any other information about > Parkinol? The > > class > > > of drug, at the very least. Some references to preliminary > work? > > > > > > I am very impressed by Dr. Latham's credentials, yet I am unable > to > verify > > > them since you mention no institutions or affiliations for his > educational > > > or professional credentials. Are those available? > > > > > > Thank you very much for your replies. > > > END QUOTE > > > > > > > > > > > > ----- Original Message ----- > > > From: "Peggy Willocks" <[log in to unmask]> > > > To: <[log in to unmask]> > > > Sent: Friday, August 01, 2003 12:26 AM > > > Subject: Re: In Search of a Cure > > > > > > > > > > So true, Dr. Romero! I did the same PubMed searches - but he > doesn't > > say > > > > his publications were in the journals covered by PubMed (it > might have > > > even > > > > been "Reader's Digest!") > > > > And I would really appreciate you or someone checking into his > > > credentials. > > > > I did make a personal visit to the lab - he is working on > something > with > > > the > > > > rats related to PD - and showed me evidence that the FDA had > been > > working > > > > there reviewing his pre-clinical trials. > > > > > > > > I admit not much at the website, but we'll keep being > detectives! > > Thanks > > > > for any help on this onel > > > > > > > > Peggy <*]]>< > > > > "Where there is no vision, the people perish." > > > > --Proverb > > > > > > > > > > > > ----- Original Message ----- > > > > From: "Jorge Romero MD" <[log in to unmask]> > > > > To: <[log in to unmask]> > > > > Sent: Friday, August 01, 2003 12:58 AM > > > > Subject: Re: In Search of a Cure > > > > > > > > > > > > > CAUTION: > > > > > > > > > > The site has no substance at all. It talks about Parkinol > and about > > Dr. > > > > > Keith Latham. His credentials, disclosed in > > > > > http://www.parkinsons-research.com/aboutdr.htm > > > > > are vacuous. No institutions are mentioned for any of his > degress > or > > > > > affiliations. > > > > > > > > > > A quick search of PubMed for articles published by Keith > Latham > yields > > > > > absolutely nothing. > > > > > > > > > > Yet, there is a prominent link for DONATIONS.. > > > > > > > > > > A Google search for PARKINOL only circles back to that same > site, or > > > goes > > > > to > > > > > another site which sells PARKINOL = trihexyphenidyl made by > Nile Co. > > > > > > > > > > As you folks may all recall, trihexyphenidyl is nothing but > the old > > > friend > > > > > ARTANE, one of the first anticholinergic drugs used to treat > PD. It > > is > > > > far > > > > > from a cure. > > > > > > > > > > Does someone have other information on this drug? It sounds > like a > > hoax > > > > or > > > > > a scam. > > > > > > > > > > Jorge Romero, MD > > > > > > > > > > > > > > > ----- Original Message ----- > > > > > From: "Linda J Herman" <[log in to unmask]> > > > > > To: <[log in to unmask]> > > > > > Sent: Thursday, July 31, 2003 5:50 AM > > > > > Subject: In Search of a Cure > > > > > > > > > > > > > > > > Dear listmembers, > > > > > > > > > > > > Please see http://grassrootsconnection.com/klatham.htm > > > > > > for an amazing article, also by Peggy Willocks, about > the power > of > > > the > > > > > > Internet and the power of the Parkinson's community in > the > "Search > > > for > > > > a > > > > > > Cure" > > > > > > > > > > > > Linda > > > > > > > > > > > > > ---------------------------------------------------------------------- > > > To sign-off Parkinsn send a message to: > > mailto:[log in to unmask] > > > In the body of the message put: signoff parkinsn > > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn