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THANK U BILL FOR POSTING THIS. I SPOKE TO BARB ALITTLE YESTERDAY. HER SPEECH SOUNDED BETTER. IT WAS ABOUT 11 AM. WE SPOKE FOR ABOUT 5 MINUTES. I DIDN'T WANT TO WEAR HER OUT. I WILL BE WAITING FOR HER PHONE CALL TO SING ME HAPPY BIRTHDAY SOON. SHE ALWAYS DOES:) SHE NEVER FORGETS MY BIRTHDAY. IF I AM AT THE CLINIC SHE SINGS IT TO MY VOICE MAIL. NOW THAT IS A TRUE HUMAN BEING! LOVE YOU BARB! NANCY AKA BOSSLADY:) BARBARA DAVIS wrote: > >> >>> Hi, my name is William Davis and I am care giver to my wife Barbara. >>>She has had Parkinson's for 10 years. With the usual progression of the >>>disease. >>>And the loss of effectiveness of the medications. >>> She is being treated at Boston University Medical Center by Dr. Marie >>>Sainte Hillaire >>>at first and now Dr Samuel Ellias. >>> About a year and a half ago the medicines stopped working. With the >>>freezing and ridgity >>>and diskinesia from the Sinemet. >>> She was evaluated for DBS/STN at that time and went through the >> >>evaluation. >> >>>The first problem was they weren't sure about DBS and Clozaril the >>>antipsychotic which she was on because of a psychotic break. Probably to >>>much Sinemet and Amantadine. Hospitalized for 2 months. 2 weeks in >> >>hospital >> >>>and 6 weeks in nursing home. A very rough time for all. >>> She was turned down at that time for DBS. They said they thought she >> >>might >> >>>be eligible >>>at a later time. >>> A short time afterwards she was offered a Pallidotomy. Which she had. >> > We > >>>all had great hopes. The right side diskinesia had become violent. The >>>pallidotomy cured the diskinesia. >>>But unfortunately her walking got worse. It still up in the air whether >> > it > >>>was worth it. >>> A few months later they started talking about a DBS again. The doctors >> >>said >> >>>they because >>>of their knowledge of her on the operating table and her recovery after >> >>the >> >>>pallidotomy they felt she could handle the DBS. >>> Boston University medical has just set up a program to compare people >> > who > >>>have had previous surgery's to those who haven't. There is no previously >>>published data comparing the two of them together. >>> At BU Medical the neurosurgeon, Jules Nazzaro feels strongly that it is >>>best to do the procedures separately. 4 separate as opposed to 2 and 2 >> > and > >>>definitely against all 4 at once. >>>So after the evaluation again which she passed with flying colors. She >> > had > >>>the 1 operation on August the 6th which went very well. She is going to >>>have the second operation on Monday the 11th. The stimulator >> > implantation. > >>> We have a friend who had the DBS a few weeks before and has had very >> > good > >>>results. She had some improvement just from having the operation before >> >>the >> >>>stimulators were turned on. >>> The day after Barbara came home there was some observable improvement. >>>Walking was better and left side diskinesia was less and dystonia was >> >>less. >> >>>But alas walking returned to old pattern. Diskinesia and dystonia still >> >>seem >> >>>to be less.One interesting comment Barbara >>>made when walking was better was that she felt that "My brain is doing >> >>this, >> >>>not me " >>> So we live in hope that she will have one of the miracle results and >> > be > >>>happy with good >>>improvement. >>> >>>With prayers for all Parkinson's patients and their caregivers and >> > family > >>>and friends >>> >>>William Davis >>> >>> >>> >>> >>> >>>------------------------ Yahoo! Groups Sponsor ---------------------~--> >>>Buy Ink Cartridges or Refill Kits for Your HP, Epson, Canon or Lexmark >>>Printer at Myinks.com. Free s/h on orders $50 or more to the US & >> > Canada. > >>http://www.c1tracking.com/l.asp?cid=5511 >> >>>http://us.click.yahoo.com/l.m7sD/LIdGAA/qnsNAA/aGdxlB/TM >>>---------------------------------------------------------------------~-> >>> >>>To unsubscribe from this group, send an email to: >>>[log in to unmask] >>> >>> >>> >>>Your use of Yahoo! Groups is subject to >> > http://docs.yahoo.com/info/terms/ > >>> >>> >> > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn