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u might want to write to the shy drager/msa list. we have more of a pd + group there. I am 45 and been dealing with this unexpected array of noticable neuro/autonomic medical problems that can't be fixed. Some there are no meds. I can't dwell on everything that is wrong with my organs, i just have to keep trying. i can accept, but FEAR is a terrible thing. Don't let FEAR over take u. I know it is very hard. I understand. Keep writing. IF no replys comes, then at least u wrote ur feelings. Doing that is a big relief. olga i can't reply hardly, but i do read. I can't help people like i use to and i am not use to that. If the problem is quick to fix with a phone number for referance for that person in dispair I do it, otherwise I have been learning to let go. That is really hard because my ethics dictate otherwise. I took my professional ethics very seriously, but have to accept that I don't have the energy to solve the problem for others. HOWEVER, it isn't that I don't care. Someone will always care about you. Someone will always being ur hand. It is just sometime u may not feel the physical hand. don't give up. nancy m Chandrashekhar Nagarkar wrote: > Dear Olga, > > I was so overwhelmed by your heart felt plea for help. Your original Email, listed a huge list of problems in kidneys, liver, heart, blood pressure, pain, PD, pneumonia etc I found it frightening the number of things which you are having to cope with. My admiration of your strength and resilience, and your concern to help others with. As if that was enough you were actually writing about helping someone else. Olga you are truly an example of courage and determination. I don't know if when the time comes for me to cope with similar suffering I will have the same grit. > > You might feel lonely but you are not alone, like me there is a large mass of PIEN members who are with you and are thinking of you. Over the last few days since I read and printed your email for my wife to read we have been talking about you and about what we could suggest as a solution. So far we have drawn a blank, but don't despair someone is bound to come up with the right ideas. Most likely the ideas and suggestionsare already in your own head waiting to be nudged forward and brought to life. Until then please hang on > > Shekhar > > > ---- Original Message ----- > From: Ronaky Olga > To: [log in to unmask] > Sent: 24 August 2003 00:36 > Subject: No reply > > > "Into your hands I command my spirit" > That's what He said. > > And so did I. > No reply. > Don't know why. > > Hoped somebody would help me. It was a big mistake - me and my PD +? stayed > lonely. > > God bless you all, > > Olga > > > ----- Original Message ----- > From: "Ronaky Olga" <[log in to unmask]> > To: "Parkinson's Information Exchange Network" > <[log in to unmask]> > Sent: Thursday, August 21, 2003 6:04 PM > Subject: 1. Papaya extract 2. PD and/or hypothyroidism? > > > > Hi Friends, > > > > I have some important questions, hope some one can help me. > > > > 1. SNIPPED > > > > 2. This part is about me... > > > > There is nothing positive change in my state, moreover, I am not at all > > doing well. > > > - SNIPPED > > > Ideas? Opinions? Suggestions? Similar experiments? > > > I meant here experiences, not experiments. Sorry. Now I am seeing to have > problems in finding right words not only when speaking but also in written > texts. > > > > Love, > > > > Olga > > 51/47/40 PWP and CG for my own > > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn