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yes my tremors are controled too. at a high cost, money, pain, risk, lomg term complications of the treatment itself, but worth it. i would be in the nursing home without dbs. i still can't write my name but i can type, slowly, sit quitely in church, and while seated, hold my grandchildren. also, after several years of being gone from the list, i feel good enough to make trouble, smile, on the list again. gwc ----- Original Message ----- From: "Jo Ann Coen" <[log in to unmask]> To: <[log in to unmask]> Sent: Monday, September 29, 2003 5:37 PM Subject: Re: Meds and Me/Cheryl > Ray - So good to hear from you. At least - Praise the Lord, you are > freer from the tremors. Maybe soon, someone will come up with a solution > for dystonia. I hope so, you have been so brave and courageous, and I > admire your tenacity. Best to you. Jo Ann > > On Sat, 27 Sep 2003 17:25:38 EDT Rayilyn Brown <[log in to unmask]> > writes: > > Cheryl > > > > I was on Sinemet for a year after which I had severe toe and leg > > dystonia. I > > still have them after bilateral DBS and no sinemet for 2 yrs. It > > seems > > you're damned if you do and damned if you don't. Ray, PS - the DBS > > does stop > > tremor!!!! > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn