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GEorge - Welcome back. Yes, you can make trouble if you want to, as long as you smile afterward. Best wishes, Jo Ann On Wed, 1 Oct 2003 01:27:29 -0500 George Campbell <[log in to unmask]> writes: > yes my tremors are controled too. at a high cost, money, pain, risk, > lomg > term complications of the treatment itself, but worth it. i would be > in the > nursing home without dbs. i still can't write my name but i can > type, > slowly, sit quitely in church, and while seated, hold my > grandchildren. > also, after several years of being gone from the list, i feel good > enough to > make trouble, smile, on the list again. > gwc > ----- Original Message ----- > From: "Jo Ann Coen" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Monday, September 29, 2003 5:37 PM > Subject: Re: Meds and Me/Cheryl > > > > Ray - So good to hear from you. At least - Praise the Lord, you > are > > freer from the tremors. Maybe soon, someone will come up with a > solution > > for dystonia. I hope so, you have been so brave and courageous, > and I > > admire your tenacity. Best to you. Jo Ann > > > > On Sat, 27 Sep 2003 17:25:38 EDT Rayilyn Brown > <[log in to unmask]> > > writes: > > > Cheryl > > > > > > I was on Sinemet for a year after which I had severe toe and leg > > > dystonia. I > > > still have them after bilateral DBS and no sinemet for 2 yrs. > It > > > seems > > > you're damned if you do and damned if you don't. Ray, PS - the > DBS > > > does stop > > > tremor!!!! > > > > > > > ---------------------------------------------------------------------- > > > To sign-off Parkinsn send a message to: > > > mailto:[log in to unmask] > > > In the body of the message put: signoff parkinsn > > > > > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn