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Dear Gerry, It is great to hear that you have not encountered these issues. I too have been a Parkinson's volunteer for 13 years and travelled to remote areas and cities in Canada providing education on Parkinson's and advocating for quality care. We need to become informed just as you said, don't be afraid to question. When we understand, we can then make informed decisions to meet our particular needs. I have not seen people with Parkinson's all have the same need. They are all uniquely different. Many thanks for your great comments. Sandra ----- Original Message ----- From: "Gerry Haines" <[log in to unmask]> To: <[log in to unmask]> Sent: Wednesday, October 01, 2003 6:43 AM Subject: Re: Caregiver-Wellness focus > Wow!!!! > I have been caregiving for 17 years and speaking to groups for over 10 and I > did not find all those negatives here in the US. Parkinson patients and > caregivers are the most informed people in any disease and neurologists here are > well informed as a whole. All our organizations do a super job of informing and > will answer any questions you have, all of them have people in positions that > are knowledgeable. > I will admit that you must be very careful if your patient is admitted to a > hospital, Brig went through bladder cancer visits every 6 months for almost 17 > years(1986 was a difficult year) and abdominal aneurysm found in the same > year. He was operated on about 3 years ago for that and came out just about as > good as he was when he went in.....Don't misunderstand me, I was on top of every > pill and had doctors so well informed, they asked me about medication, (no, I > am not a nurse). > Between and that and advocacy, I feel responsible to be so well informed that > there is no problem, it is our responsibility to get the best doctor, the > best hospital if necessary. Ask questions!!!!!!! > Gerry and Brig diagnosed > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn