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Thanks, Ray. I wish you the best in finding solutions for your dystonia. I'm so sorry that the DBS made it worse, and also caused speech problems. I hope you are able to regain those loses. Have you ever tried Baclofen for the Dystonia? Charlotte Rayilyn Brown <[log in to unmask]> wrote: Charlotte I get a dystonia newsletter and learned that some people, young ones, have JUST dystonia and sometimes it is responsive to Sinemet, hence DRD. The DBS surgery is done with electrodes to globus pallitus sp??? for folks with just dystonia. My electrodes went just to subthalmus nucleus because I have PD It has helped tremor and upper body strength, but dystonia is worse, which neuro told me could happen, so is talking. I'm waiting for approval from Medicare for botox for my dystonia wracked toes. I feel like I may have 2 diseases Botox did not help my left leg which has been drawn up for 7 years - I walk on my toes and have hard time putting my heel down. Will see programmer tomorrow - my CG thinks she upped left side (which was OK) last time and I still have tremor in my right foot, so left brain voltage neeeds to be increased. I took some Sinemet today and it MAY help a little I don't know. The more I learn the more complicated it becomes. ALl I know is sI"m not tap dancing like others with DBS surgeries, but it has helped tremor - which has stopped completely on left side. Ray ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn In the body of the message put: signoff parkinsn