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Ray and others, Can you tell me more about Dystonia and PD and/or DRD--Dopamine Responsive Dystonia? I'd be very interested in hearing from others with PD and dystonia. I have PD symptoms with intention tremor rather than resting tremor, and have dystonia as well, which is one of my biggest problems along with slowness, some shuffling, rigidity, and lack of dexterity-balance is really good. I take Baclofen for the dystonia, which helps quite a bit, and I take Sinemet, which has never given me that big bang either--takes a long time to work and doesn't work for very long, but I do need it. I've given up agonists--and in some ways I'm better off for it and worse off in other ways. I'm really frustrated with Drs. as well. What would I do without this list! Thanks much, Charlotte Mancuso Rayilyn Brown <[log in to unmask]> wrote: Judith, PD meds don't seem to help me either. I've just had bilateral DBS brain surgery in subthalmus nucleus and it really helps tremor, but other things are atypically worse, like walking and speaking I don't have DRD (Dopamine Responsive Dystonia)(DBS is now done on the globus pallidus "sp"?for dystonia) and was only "ON" the first time I took Sinemet. Told my neuro I have never gotten the "Big Bang" out of meds like most people do. she conceded I was a "weird duck", but believes I do have PD as I have every syjmptom except facial mask and and PET scan which supports the diagnosis of idiopathic PD. Am going for another programming hopefully next week. She even asked me what I thought I had. It is very discouraging. Ray ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn In the body of the message put: signoff parkinsn