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<---- Begin Forwarded Message ----> Date: Wed, 19 Nov 2003 02:08:54 -0800 From: janet paterson <[log in to unmask]> To: [log in to unmask] Subject: Re: [NVNews] i'm thinking of starting a new online pd support group ... hi all here is a re-post (from my journal) of an article about a moderated email group: quote: "One problem with many Internet groups is that people can be very nasty" i venture a supposition that if 'pain management' in the article were changed to 'parkinson's disease' in a new similar group the results would also be similar i truly believe that the primary key * is pro-active moderating of all communications and no existing pd group online offers it because it would be a ton of work (peg - maybe some groups are 'starved for memberships' for this reason? * the secondary key being verification of memberships my idea is that i would have the time and energy to devote to such a group once my book is finally published janet ----------------------------------------------------------- 2002/04/11 Reuters: E-mail discussion group helps patients E-mail discussion group helps back pain patients New York, Apr 10 (Reuters Health) - People suffering from back pain may get relief by participating in an e-mail discussion group that is moderated by healthcare professionals, study findings suggest. Chronic recurrent back pain is a very common medical condition and is second only to respiratory tract infections as a symptomatic condition for which people see a doctor. According to Dr. Kate R. Lorig of Stanford University in California and colleagues, previous research has found that educational interventions may reduce back pain symptoms in some patients. Lorig's team investigated whether or not participating in a moderated e-mail discussion group would improve the quality of life in patients with back pain. The study results are published in the April 8th issue of the Archives of Internal Medicine. In the study, 190 men and women with back pain participated in the discussion group for one year. Patients received e-mails from other members or the moderators: a physician, a physical therapist and a psychologist. The experts answered general questions and commented on the discussion. They did not give specific medical advice. The patients also received an educational videotape and a book about back pain. The e-mail group was compared with 231 men and women who also had back pain but did not participate in an e-mail discussion group. Instead, this group received a subscription to a non- health-related magazine of their choice. After one year, those in the e-mail discussion group "demonstrated significant improvements in all of the primary health status variables" compared with patients in the other group, the authors report. Specifically, patients in the e-mail discussion group had improvements in pain and disability, their back pain interfered less with their lives, and they spent less time worrying or being frustrated about their condition, the investigators found. "People participating in an e-mail discussion group with other patients and with health professionals have less pain and disability than people who did not participate in the group," Lorig told Reuters Health in an interview. "Thus, it may be that e-mail support groups, at least for some people, can be beneficial," she added. Lorig noted that she and her team could not pinpoint exactly why patients fared better in the e-mail support group. "The bottom line is that after looking at many, many different things, we could not come up with anything that predicted success," she said. "This does not mean that the effects were random, merely that different people took different things away from the intervention." What does seem apparent, according to Lorig, is that people with back pain or any other chronic condition can benefit from sharing experiences with each other and being in contact with a well- informed health professional. However, Lorig cautions that such discussions must be moderated. "We had very few rules for our group - the number one being that people had to be nice to each other," she said. "This was strongly enforced, especially at the beginning. "One problem with many Internet groups is that people can be very nasty. We wanted to, and achieved, a safe place where people hold discussions." Archives of Internal Medicine 2002;162:792-796 By Keith Mulvihill http://www.reutershealth.com/ -- janet paterson a new voice http://www.janetpaterson.net/ pd: 56-41-37 cd: 56-44-43 tel: 613-256-8340 an akinetic rigid subtype, albeit primarily perky, parky <---- End Forwarded Message ----> ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn