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Well, I  have  primarily been a "Lurker" on  this list
for for the last eight years. I am Thankful that this
list  exists. I habve learned much about this disdeas
in that time. Thasnk you, listers for all you have
given me over the last eight years. I hope this list
will still be active for at least another eight years.

Yours and His

David L Moreland


--- Carole Hercun <[log in to unmask]> wrote:
>  Dear Barbara (and John),
>
>  You, and the forum you provide, ARE appreciated.
> Thank you.
>
>  The (sometimes) silent Carole Hercun
>
>
> Barbara Patterson <[log in to unmask]> wrote:
> I resent the word 'lurker'. Webster defines 'lurk'
> as: "to lie in wait
> in a place of concealment esp. for an evil purpose"
> and its synonyms
> as: "skulk, slink, sneak".
>
> Surely, there must be a better term to identify
> those of us who do not
> post messages to the list because 'lurker' does NOT
> fit. How about 'the
> silent majority'. How about the fact that many of
> our members are not
> physically able to type messages; or that many
> people don't feel the
> need to contribute their 2 cents worth as often as
> others.
>
> This list exists solely and completely for the
> support and sharing of
> information about Parkinson's. Information on
> medications, surgeries,
> research, political activisim, quality of life, and,
> most of all,
> first-hand experience for all pwp's and their loved
> ones and
> caregivers. There is no obligation to contribute.
> Those who do are
> greatly appreciated for their time and effort
> (Murray, you're one!).
> Those who do not, are also appreciated for their
> interest in the list
> and for their interest in learning about Parkinson's
> in this unique
> way. Some of us are born 'talkers'; some are born
> 'listeners'. There
> is a need for both.
>
> This list is unmoderated because John Cottingham and
> I feel it should be
> open. Neither of us wishes to impose our viewpoints
> as the only
> viewpoints which is what could (and does) happen on
> moderated lists.
> Sort of 'toe the party line' and you're in'
> attitude. Well, that's not
> us. We like freedom. We like openness. We only keep
> the focus
> directed towards Parkinson's and avert/divert list
> wars. Other than
> that, we are all adults who have an interest in
> Parkinson's and, having
> read and understood and agreed to the list Charter,
> chose to join PIEN.
>
> This topic pops up so regularly that it really does
> feel like 'deja vu
> all over again'. :)
>
> Concern about identities on the internet is valid.
> Just because I say I
> am someone, doesn't necessarily make it true. Just
> as we don't
> automatically accept that someone who knocks on our
> door asking for
> help, donations, etc. is who he says he is. We take
> precautions. We
> offer to make a phone call for them. We don't let
> them walk into our
> homes. Giving out one's home phone number on the
> internet to prove
> one's identity is not really the greatest idea. Some
> folks who make a
> big deal of this consistently refuse to answer or
> return calls. What is
> the point?
>
> In case any one has any concerns about the Parkinsn
> Information Exchange
> Network, and does not want to use email to contact
> me, my home phone
> number is 905-627-1832. I will answer the calls. I
> do NOT advise
> anyone else to post their home phone numbers in the
> interests of safety.
>
> This message has covered many topics. Here's one
> more: To Margaret
> Tuchman and the Parkinson Alliance, thank you very
> much for your prompt
> and willing support. It makes us know we are
> appreciated.
>
> Barbara Patterson
> PIEN List Owner,
>
>
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>
>
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