Hi Larry,
My name is Paula from PA, 49 &356 days old, was diagnosed at age 37,
had deep brain stimulation on both sides in October 2000. It was
successful. It took away all the dystonia pain in my right foot and my
terrible dyskenesia. The downside is I wasn't able to discontinue or lessen
any of my meds. I take 7 - 1 mg Permax each day, 4 - 25/100 regular
Sinemet - had trouble with the Sinemet CR and taking Sinemet in liquid
orm - back to regular, 4 - Elavil , and 3 Amantadine.....plus Vitamins.
Ibuprofen helps me for pain in a matter of minutes.
Hope this helps. Best wishes
Paula
----- Original Message -----
From: "Larry Barker" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Wednesday, January 21, 2004 10:30 PM
Subject: New to this....
> HI...
>
> Finally, I am coming to grips with the fact that I need to talk with
others
> that share the same affliction I do, so I am coming to this group and look
> forward to getting involved.
>
> I am a 55 y/o guy in Texas that has been diagnosed with PD for about 4 1/2
> years. My primary problem area is my right leg and foot. The toes on this
foot
> clench when I am in a seated position (like in siting at the computer or
> driving my truck). The clenching is sometimes so severe that my toes go to
sleep
> and, particularly sometimes when driving, cause me to lose feeling in the
foot. I
> sometimes cannot feel the difference between the accelerator and the brake
> pedal. One close call due to this has caused me to be EXTRA careful.
>
> And, of course, the relief I have been getting from medication is getting
> shorter lived as the days pass. ( I am on a regimen of Requip, Selegeline,
> Amantadine and Trihexane)
>
> Have any of you experienced this? ... I think it is called dystonia (?)..
> those that understand what I am talking about..... how have you treated it
and
> how has it responded?
>
> Larry - Dallas, Texas
>
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