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HAVE U TRIED WATER THERAPY RECOMMENDED BY A REHABILITATION PHYSICIAN? NOT AT UR LOCAL POOL, BUT AT A FACILTY FIRST TO LEARN THE CORRECT POSITIONING OF THE MOVEMENTS. FALLS, SLEEPING AND STANDING INCORRECTLY , ECT. INTERFERE WITH MOVEMENT AND CAN CAUSE PAIN. I DON'T KNOW SO I AM ASKING....HAVE U SEEN A REHAB PHYSICIAN WHO SEES ALOT OF NEURO/ MOVEMENTS DISORDER PATIENTS? nancy m FrankandTeri wrote: >This is interesting information, (sorry "Brightline" not sure of your name), >especially considering a direct correlation between inflammation and >worsening of symptoms of PD. > >Does anyone else have any information that draws any correlation between >inflammation, autoimmune disorders and PD? This of course may be a chicken >and egg thing, which come first or are they even related at all. There are >many aging problems not all related to PD but our bodies work as a system >and there is always interaction. > >My wife was diagnosed in her late 40's and has similar complaints, though no >frozen shoulders, looking back it was also possible to see where many of her >complaints were misdiagnosed at first. > >She is now experiencing back pain, shoulder pain, neck pain and her posture >has transformed to the point where she is becoming unstable when standing. >She to uses Ibuprofen. I did not know is caused increases in blood pressure >and weight. I will have to look into that drug. She also has Hashimoto's >Thyroiditis and was suspected of having a very rare disorder Hashimoto's >Encephalopathy (please forgive the spelling). Both of these (though there >is much debate about the second) are autoimmune disorders. The first is >where the Thyroid is attacked by the autoimmune system eventually causing it >to underperform. The second is where the same immune system attacks the >brain and causes many symptoms. Imagine a PWP with this problem... The >treatment that worked was high doses of steroids and then a maintenance >dose. A great side effect during the course of treatment was an almost >total elimination of her asthma symptoms (reduction of inflammation in >lungs). Since we have stopped the steroids it seems she is now experiencing >more pain. I wonder if this could be inflammation you mentioned? I will >have to speak to the neurologist about it. > >Of course we have to consider the same conditions without PD. When you >don't exercise you become stiff and more susceptible to pain, you have pain >and exercise less. You exercise less and you lose strength. You lose >strength you lose muscle tone. It is a vicious cycle. The University of >Pittsburgh had an ongoing study looking at exercise programs and PD. It did >not take a rocket scientist to determine what the outcome was: more >exercise, less pain, better strength, better posture and fewer PD symptoms. >This was not a miracle but the effects were obvious. > >Have you been participating in some kind of exercise program? "Use it or >lose it" is always wise advice and a good course to follow. It does take >encouragement and a few life style changes. I am going to focus on that for >my wife. > >Frank cg. Teri 52/47/40 15024 > > > >----- Original Message ----- >From: "Brightline" <[log in to unmask]> >To: <[log in to unmask]> >Sent: Sunday, February 15, 2004 6:52 AM >Subject: Focus Needed... Pain & PD > > > > >>Hi! >> I have been touched by this statement of Frank dated 14th Feb 2004: >> >>" I Need Information on Parkinson's! I Need Help with this disease! I >> >> >Need > > >>Guidance on what to do medically and emotionally not politically or >>religiously! I Need to Understand this thing! I Need to hear others >>experience! I need help! I Need Hope!" >> >> This represents the sole purpose of this forum. Here I would like to >>focus of Pain & PD. >>This is my experience with Pain and PD. >> >> Alost 15-20 years before I was diagnosed with PD, my problem was pain >> >> >in > > >>my right shoulder. >> PD or Pain, whhich came first? >> In my case, PD came first, even though I did not realize it. As a >> >> >hind > > >>sight, we all probably realize that we had symptoms of PD long before we >>were diagnozed, only after being diagnozed. >> I had my partially masked face in my 30s, shoulder pain in my 40s, >> >> >and > > >>frozen shoulder in my 50s. No one told me that these were symptoms of PD. >>I was diagnozed with different things including gout, tendonites, >>spondilytes etc. I was given all kinds of physiotherapy which were only >> >> >of > > >>temporary comfort. Sooner or later, as the disease progresed, the pain as >>well as other symptoms such as dystonia, bradykinesia, postural >> >> >instability, > > >>drooling, and other things slowly crept on me. Fom my experience, I think >>this is the sequence of events: >> Slow death of dopaminergic neurons, >> Inflammation causing pain at initial site of physical problems, >> Inflammatoy cytokines (Eg. IL1beta) level goes up in the blood. I am >>not sure if IL1beta can cross brain blood barrier. If it does, then this >>could cause additional problem in the brain such as aggravating the >>inflammation of glial cells accelarating the progression of PD. >> I am going through a rough period of pain currently. Assuming thatmy >>hip and shoulder pain could aggravate the PD symptoms, I have been taking >>Ibuprofen, which caused increase in weight and blood pressure. Therefoe, I >>shifted o celebrex. In my expereince, celebrex completely reducedmst f my >>symptoms, including postural instability! >> I think one has to take into account the role of inflammation, pain and >> >> >the > > >>inflammatory cytokines in the progression of PD. >>********** >> FYI, I am quoting somebody else's statement regarding Pain & PD below: >> >> "Subject: Re: PD and Pain >> From: "Anonymous" <[log in to unmask]> >> Date: Thu, 12 Feb 2004 22:08:51 -0600 >> X-Message-Number: 5 >> >> This is interesting...Sounds like it is caused from PD...but >> >> >could > > >>be that >> PD patients have pain in shoulder from PD and then get frozen >>shoulder >> because they are not moving arm because of PD pain...huh? >> >> comment >> fact is we don't know which comes first and your supposition is a >>reasonable one" >> ************ >> The purpose of this email is to request you to post your experience >> >> >with > > >>PD and Pain. Such data may induce research on this aspect of PD. >> >> Thanks for your cooperation. >> >> More on Pain & PD later. >> >> Brightline >> >>---------------------------------------------------------------------- >>To sign-off Parkinsn send a message to: >> >> >mailto:[log in to unmask] > > >>In the body of the message put: signoff parkinsn >> >> >> > >---------------------------------------------------------------------- >To sign-off Parkinsn send a message to: mailto:[log in to unmask] >In the body of the message put: signoff parkinsn > > > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn