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Carol, you sound like me in the first few years, then it became bilateral last year after 6-7 yrs. Dystonia can certainly be painful as your muscles are being pulled into abnormal positions. My little left toe seems to be being pulled out of its socket. Some people just have dystonia. One young gal had it so bad it broke her jaw.There was young guy 18 yrs old here in Murrieta who was in fetal position due to dystonia who was 'cured" by DBS. Bilateral DBS only helped my tremors. Ray ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn