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FROM:
Roll Call
March 26, 2004
Research Ban Should Be Overturned

By Rep. Tammy Baldwin
Did you hear the one about the doctor talking with a just-diagnosed
Alzheimer’s patient who says, “I have good news and bad news for you? The
good news is we stand on the threshold of dramatic treatments and
possibly a cure for your disease. The bad news is, the government is
restricting our research.” As you may have guessed, this is no joke. It’s
a story being played out every day in doctors’ offices around the country
to patients newly diagnosed with such catastrophic conditions as
Alzheimer’s, Parkinson’s, ALS, juvenile diabetes, spinal cord injuries
and countless other illnesses.

Scientific breakthroughs have brought new hope to patients and their
families by isolating and then propagating a form of human cells, known
as “stem cells.” University of Wisconsin at Madison professor James
Thomson was the first to grow and sustain human embryonic stem cells in a
lab. This advance was earthshaking. When human embryonic stem cells were
introduced to the world, then-National Institutes of Health Director
Harold Varmus told a Senate hearing, “It is not too unrealistic to say
that this research has the potential to revolutionize the practice of
medicine and improve the quality and length of life. There is almost no
realm of medicine that might not be touched by this innovation.”

This research provides the opportunity to study the growth and
differentiation of individual cells. Understanding these processes could
provide insights into the causes of birth defects, genetic abnormalities
and a multitude of diseases. If normal development were better
understood, it might be possible to prevent or correct some of these
conditions. There is no doubt among scientists that this research holds
amazing potential.

Despite all of this promise, the federal government limits federal funds
for embryonic stem-cell research. Specifically, President Bush declared
that researchers who receive federal funding could only work with human
embryonic stem lines that were derived before 9 p.m. on Aug. 9, 2001. At
the time, he assured the public that more than 60 colonies of stem cells
would be eligible for federal research funds.

Yet this has clearly not been the case. Of the original 78 total
stem-cell lines that were potentially eligible for federally funded
research, only 15 are actually available to researchers today. Reports
issued in early March confirm that at least 16 of the 78 approved
stem-cell colonies have either died or failed in their laboratory dishes
and many others are unavailable; so an already restricted resource for
scientists is further restricted. This is simply unacceptable.

In addition to stifling our scientific progress, this hostile policy
threatens the very foundation of our country’s scientific community — our
brainpower. Because the Bush stem-cell policy is so severe in limiting
stem-cell research, fewer and fewer scientists are choosing to enter this
research field. Understandably, they are unwilling to risk their careers
by focusing on a research field that is already restricted and could be
abruptly canceled or deemed unlawful. This is a harsh departure from our
nation’s tradition of nurturing and supporting promising research. While
we impede progress in this area, other countries are actively encouraging
the development of stem-cell research labs. It is truly regrettable that
we are allowing this opportunity for scientific advancement to pass us
by.

Fortunately for science, new colonies of human embryonic stem cells,
developed with private funding, are being created and freely shared with
scientists around the world. This is good news, and I am hopeful that
these new lines will lead to exciting new discoveries. Nevertheless, I
remain deeply concerned because scientists who are federally funded still
will not be able to conduct research on these lines simply because they
were created after the president’s arbitrary cutoff date.

In the past decade, Congress has rightly demonstrated a strong commitment
to biomedical research by doubling funding for the National Institutes of
Health. Today, the NIH is funded at nearly $28 billion. Yet, because of
the Bush administration’s irrationally imposed deadline regarding
stem-cell research funding, we are cutting off some of the most promising
research.

Last year, more than $250 million was spent on NIH-funded adult stem-cell
research (widely believed to hold less promise than embryonic stem-cell
research), while only about $10 million was spent on embryonic stemcell
research.

This senseless policy must be revoked. There are simply too many
possibilities that stem-cell research holds to allow these restrictions
to continue. Every day that goes by, more men, women and children are
suffering and dying from illnesses that stem-cell research may one day
prevent, treat or cure.

Stem-cell research has wide bipartisan support both in and out of
government. It has the support of the American Medical Association, the
Juvenile Diabetes Research Foundation, the American Bar Association and
former first lady Nancy Reagan, among others. Most recently, more than
100 Members of the House of Representatives, on both sides of the aisle,
signed a letter to President Bush urging him to expand his restrictive
policy.

It is time to overturn the Bush stem-cell policy. We simply cannot afford
not to aggressively explore the possibilities that stem-cell research may
unlock. There is just too much at stake.

Rep. Tammy Baldwin (D-Wis.) is a member of the Budget Committee.

Posted on CAMR website:
http://www.camradvocacy.org/fastaction/news.asp?id=821

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