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----- Original Message ----- From: "Carole K. Menser" <[log in to unmask]> To: "P..L. Maddux" <[log in to unmask]> Sent: Sunday, April 18, 2004 7:16 AM Subject: Re: new diagnosis young onset > Lisa and all -- > I understand there is a class action lawsuit being proposed regarding > Mirapex. A number of people have reported developing serious addictive > behaviors after being on this drug -- such as gambling and shopping which > became so severe as to destroy them financially. Also, a number of people > have reported falling asleep while driving. We've had personal experience > with that. Scary. I would definitely think twice about Mirapex. It seems > to work fairly safely for some but for others can have terrible and > life-threatening side effects. > > Carole and Ted > > > ----- Original Message ----- > From: "P..L. Maddux" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Saturday, April 17, 2004 4:41 PM > Subject: Re: new diagnosis young onset > > > > Hi Lisa, > > > > I developed a slight hand tremor almost 9 years ago, at age 60, so I was > not > > really young when it started, and did not take any medication for a year > or > > two Then I found out that benadryl was a helpful (mild) PD drug, and I > took > > it for 3 or 4 years. I then went to an MDS (movement disorder specialist), > > and he started me on Mirapex. It did not help the tremor much, but I think > > it has delayed the progression of my PD. By the time I reached 8 years I > was > > having fatigue and was having a hard time walking any kind of pace, also > > could no longer swim more than 1/4 length of a pool at the health club. So > I > > started sinement and it was a lot of help I can now walk faster and swim > the > > length of the pool. > > > > So what I am saying is that I think Mirapex is a good drug to start on > and > > may slow down the progression of the disease. I am taking 1mg 3X a day. > The > > best thearpy for delaying symptoms is exercise. The DR's won't tell you > this > > but if you read up on the disease in publications from the NPF and other > > sources that is what they all say. > > > > I am still a stage 1 PWP. 1 being the lowest and 5 being the most > advanced. > > I do not feel very good, have very poor sleep quality and have muscle and > > joint pain. But I do not have any of the most disabling symptoms yet. Hope > > this info helps a little bit. > > > > Lanier Maddux Chattanooga Tn > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn