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Well said, Frank. Bart Conard > [Original Message] > From: FrankandTeri <[log in to unmask]> > To: <[log in to unmask]> > Date: 5/9/2004 2:00:04 AM > Subject: Re: any thoughts on stem cell questions? > > I am particularly interested in the last question number 4. I believe you > need to choose your battles. We all have the same desire and that is to > find a cure. All to often we choose to make disagreements into political > statements that serve some other purpose. We lose focus. The idea of > teamwork, even when you disagree with your team members, is to find what you > can agree on and put your efforts into that. Putting efforts into political > issues dilutes the limited political as well as financial capital there is > to fight this disease. > > Embryonic stem cell research will remain an issue long after Bush is gone be > it his first or second term. It will be here after a Democratic president > is gone if he wins. Using your own stem cells is another issue. By > launching and education campaign and working around sensitive "human > cloning" issues this has to be the single best hope at this time. Perhaps > people will find a way to work together instead of viewing a disagreement as > a chance to "get" those we disagree with. > > When advocacy takes on the cloak of a political party and makes the other > party a target it ceases to be advocacy and becomes a manipulative arm of a > political machine. Advocacy must be inclusive of all, exclusive of > political parties (either one) and focused on an achievable goal. They must > avoid aligning with political parties and their penchant to use and abuse > interest groups. > > Frank cg. Teri 52/47/40 15024 > > > ----- Original Message ----- > From: "tomberdine" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Friday, May 07, 2004 7:59 PM > Subject: any thoughts on stem cell questions? > > > > HYPERLINK > > > "http://www.stemcellnetwork.ca/partners/jdrf/news/articles.php?id=27"http:// > > www.stemcellnetwork.ca/partners/jdrf/news/articles.php?id=27 > > > > > > With the Parkinson's community hard on the advocacy trail to allow federal > > money to be used for stem cell research for therapeutic cloning it > occurred > > to me that there are several questions that need to be asked. > > > > 1. With a 8 to 25 percent misdiagnosis rate of the disease, meaning that > > between 120,000 to 375,000 of us (based on the guess of 1.5million > diagnosed > > in the US)currently diagnosed with Parkinson's disease do not have the > > dopamine cell loss producing our parkinsonism symptoms, will stem cells > that > > can become dopamine cells help in these cases? > > > > 2. How expensive would stem cell therapy be and would insurance companies > > cover it? > > > > 3. If/When stem cell treatment for Parkinson's becomes available will it > be > > necessary to use the PET SCAN prior to treatment to ensure that the > > parkinsonism is dopamine cell death? I ask this because Deborah Setzer had > > been flown to Cedars Sinai to be evaluated as a candidate in Dr Lévesque's > > stem cell clinical trials (using ones own stem cells to repair the > dopamine > > cell death). However when she got there he ordered a PET SCAN and found > that > > her parkinsonism was not dopamine cell death (true PD) and thus stem cell > > therapy would not help her. > > > > 4. Stem Cell therapy using ones own stem cells for other ailments is > > currently already being successfully used. Dr Levesque of Cedars Sinai has > > done work in this area with reported great results with a Parkinson's > > patient (Dennis Turner). Any idea on how Mr Turner is doing since the > > implants 2 years ago? Last report I saw was he was 80% recovered. Also > what > > is the status of those trials and why is more attention not placed on this > > process vice the controversial embryonic stem cell? > > > > > > --- > > Outgoing mail is certified Virus Free. > > Checked by AVG anti-virus system (http://www.grisoft.com). > > Version: 6.0.670 / Virus Database: 432 - Release Date: 4/27/2004 > > > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn