Hi Chris:
Thanks for the update. I am glad to note that you are improving.
Two questions:
1. How did they quantitatively meassurethe 10% progression of the
symptoms in the absence of DBS?
2. What is postural tremor? Is this action tremor (a characteristic of
ET but is also found in some PD patients? Or is it something entirely
dfferent?
Murray, I think, is doing fine and is being as active as usual.
Raj
*************
----- Original Message -----
From: Maggie Tittle <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, May 29, 2004 12:15 AM
Subject: Well I'm back from Stanford
> I'm back from Stanford University's Neurology Lab. I got to play lab rat
> for two days. There was a lot of good news. Although the study isn't
> finished yet. the lab tech said they have noticed some trends starting to
> emerge. They are; 1 The DBS seems to be offering some protection in
slowing
> or stopping the progression of the disease( they expect a 10% increase in
> symptoms per year with out the DBS). 2 That the earlier a PWP gets the DBS
> the better. and 3 I only have a 2 foot splatter field while trying to eat
> with my stimulators turned off.
> According to the results, I have not progressed since I was last tested a
> year ago. With the exception of a postural tremor in my left hand, but I
> believe the Stimulator requires a different area of implantation to be
> effective on that problem. Also I was informed that Stanford University
> Will be starting Human trials with Spheremine. Dr. Gary Heit will be doing
> the surgery. Dr heit is the extremely gifted and intelligent
Neuro-Surgeon,
> who did my DBS.
>
> When I got back home, I jumped on my computer to see what was going on the
> list. Mostly good, some bad, but mostly good. then I noticed no Murray
> Charters. Does any one know where Murray is. Is he OK? Is he just taking a
> break? Did I miss a post where he explained his impending absence? I look
> forward to seeing something informative from Murray every day.
>
> Chris
>
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