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Thanks to all of those who responded to my post. By sharing your stories
and kind words I'm reassured that I am not alone. It was humbling to say
the least. I've always been very active and haven't let PD stand in my way.
I shall continue my currant activities ( Archery, cycling and kayaking)
until balance problems prove to be dangerous to that sport. PD Sucks! ; It
sucks away your stamina, it sucks away your balance, it sucks away your
physical movement, and if you let it, it will suck away your happiness.
This last part is what we have some control over.

Chris






At 05:21 AM 6/5/2004 -0500, you wrote:
>I just experienced my first falll and it was horrific.  Somehow, in the
>middle of the night, I managed to falll sufficiently hard, landing on my
>face and ending up with bruises all up and down one side of the face,one
>black eye, and two big goosebumps on my forehead.  I looked like I had
>been beaten soundly by some sadist.
>
>The weird part about it was that I have no memory of how or where it
>happened.  Probably the bathroom.   But I seem to have gotten back into
>bed (without waking my husband) and then, in the morning, took the dog
>out for a walk without noticing anything about myself.  Never looked in
>the mirror.
>
>My husband saw me when I returned and turned pale.
>
>I have since been to my internist (for x rays to make sure nothing was
>broken.  There is a newly deviated septum, but nothing broken and no
>blood--on the outside.  The face turned purple immediately..  Then to
>the neurologist who was very concerned and ordered an EEG, MRI,  Sleep
>study and neuropsychological study.  All except the sleep study showed
>nothing.  The sleep study results have not been discussed with me yet,
>but the neuro has said that there are signs of apnea.
>
>I will see the sleep specialist next week.  Apnea as a reason for
>sleepwalking and not remembering such a fall makes no sense to me.  I
>think they are reaching for an answer, but what do I know.  I have been
>known to sleep walk occassionally, with no damage,and sleep very soundly
>indeed.  My husband is worried sickk and seems to spend all night
>listening for my movements and checking up on me.
>
>Have any of you had an experience like this? No change in my meds,
>except a switch from Sinemet and Pemarin to Stalevo--but that was 6
>mnonths ago.
>
>I 'd appreciate hearing anything any of you can tell me.
>Nancy S. deGrazia
>
>Tom McCreary wrote:
>
>>My first fall was not preceded by any warning signs. the phone rang and i
>>sprung from
>>my chair as usual and everything above my waist turned like i had
>>anticipated it would. but my foot became "glued" to the floor. what a
>>tumble! Fortunately, my problem is known as "start hesitation". Typically,
>>it is he first indicator that i am "off". it only occurs until i take the
>>good sized step then im on my way as normal until....if i stop or slow down
>>the effort to take the first step begins again. the real curious dimension
>>to this is the unipaired ability of walking backwards. this direction
>>doesn't seem to be effected by the
>>hesitation nor am
>>i confined to the short shuffle steps. I don't try this in
>>public places due to me backward balance is so compromised.
>>no freeing in mid-stride yet but i have read once falling begins  more than
>>likely it can be added to the package.
>>tom
>>
>>----- Original Message -----
>>From: "Maggie Tittle" <[log in to unmask]>
>>To: <[log in to unmask]>
>>Sent: Thursday, June 03, 2004 11:01 AM
>>Subject: My first fall
>>
>>
>>
>>
>>>I know that last week I reported that Stanford said i wasn't progressing,
>>>but tipped over to today. I've " Weebled" before, but I've always been
>>>quicker than gravity. Not today.  I went to step around something, and
>>>
>>lost
>>
>>
>>>my balance. My hand wasn't fast enough to grab anything, and over I went.
>>>
>>I
>>
>>
>>>landed on our freestanding fireplace, so I didn't go all the way to the
>>>floor. The extent of my injury was a  bruised ego. I shall wait and see if
>>>this trend continues.
>>>
>>>                                                                Chris
>>>
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>>>
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>>
>>
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>>>
>>
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>>
>
>
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