Hi George,
I have had PD for 13 years, DBS (both sides) four years ago. I am
getting nervous now about getting replacement batteries when these give out
(5 yrs?) Dr says he'll know when they are getting weaker and will schedule
the procedure. He said mine seem like new. I never turn mine off. I wonder
why some people do. I told my husband that when it's lightening, I hold
something in front of my chest, even did it during a night storm when
driving. He said I just worry too much, but I can't help it and you pretty
well proved that I was right to be careful. The Medtronic Magnets are
wonderful because you can "turn yourself back on " if they stop working.
But I haven't been able to get a remote, so I'm still using an AM transistor
to tell. (I didn't think they made them anymore). Good luck. Paula from PA
----- Original Message -----
From: "George Campbell" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, June 05, 2004 1:52 AM
Subject: Re: Medtronic Magnets/George
> my right side generator is 3.0 my left side is 6.7 i tolerate the
> tingling try a more agressive technician
> there are many good dr's i have personal experience in tx a clue as to
who
> is good at dbs surgery my be if they have the volume of business to
> specialize in halo surgery
> on and off can raise a lot of questons. at this moment my rt side
generator
> is not only off but it is out we had a good lightning storm a bolt
struck
> very near our house the induced magnetic flux burned out the generator
> that's the bad news good news is that medtronic's got their design right
> and the generator failed to off in other words i am fine but must
have
> a new generator implanted
> ----- Original Message -----
> From: "Rayilyn Brown" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Tuesday, June 01, 2004 3:05 PM
> Subject: Re: Medtronic Magnets/George
>
>
> > George,
> >
> > there is no way I can get to Texas, I have a hard time getting to
> Scripps
> > clinic in La Jolla CA, my cg disappeared on Fri when I had botox
> injection
> > appt.
> >
> > I know how important it is to have the best drs, but did the best I
could.
> > My setting on right side (for left) is 3.1 on left side (For right) is
> 2.9
> > Was told 3.5 is about as high as they go. When left side was higher I
had
> > permanent tingling in right hand.
> >
> > We think we know how I got turned off, but, yes, it was strange, since
it
> was
> > so hard to get back on - -5 tries. We (my cg andI) were at design
> center
> > in AZ where I bought new house picking out flooring, etc. Magnet was in
> my
> > purse which I wear around my neck to free hands for walkers, wheelchair,
> etc.
> > Purse has very thin synthetic material. She told me to give her dad a
> hug, he
> > lives there and has been helpful. Still its strange. Had to hit it
just
> > right.
> >
> > In Surprise, I'll be 20 min from Barrow Neurological Institute and 40
min
> > from Mayo Clinic in Scottsdale. Now I'm 1 hr 10 min on good day from
> Scripps, 2-3
> > on bad day Maybe I'll have better luck there, I hope so.
> >
> > Well, piano tuner, I used to play the piano. Wish I still could.
Thanks
> for
> > your info. It helps me get the whole picture. Ray
> >
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> >
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