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i don't know what would make a good extra shield this was a BIG bolt less than 50 ft away from grandma's frame house perhaps medtronics can give us an idea of how to construct a safe room or something to use as a body shield these items could add to the problem if not properly thought out sounds like you sre getting good milage out of your generators your dr can tell you when your batteries get tired i think seven years is possible ----- Original Message ----- From: "Paula Shook" <[log in to unmask]> To: <[log in to unmask]> Sent: Saturday, June 05, 2004 2:04 PM Subject: Re: Medtronic Magnets/George > Hi George, > I have had PD for 13 years, DBS (both sides) four years ago. I am > getting nervous now about getting replacement batteries when these give out > (5 yrs?) Dr says he'll know when they are getting weaker and will schedule > the procedure. He said mine seem like new. I never turn mine off. I wonder > why some people do. I told my husband that when it's lightening, I hold > something in front of my chest, even did it during a night storm when > driving. He said I just worry too much, but I can't help it and you pretty > well proved that I was right to be careful. The Medtronic Magnets are > wonderful because you can "turn yourself back on " if they stop working. > But I haven't been able to get a remote, so I'm still using an AM transistor > to tell. (I didn't think they made them anymore). Good luck. Paula from PA > ----- Original Message ----- > From: "George Campbell" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Saturday, June 05, 2004 1:52 AM > Subject: Re: Medtronic Magnets/George > > > > my right side generator is 3.0 my left side is 6.7 i tolerate the > > tingling try a more agressive technician > > there are many good dr's i have personal experience in tx a clue as to > who > > is good at dbs surgery my be if they have the volume of business to > > specialize in halo surgery > > on and off can raise a lot of questons. at this moment my rt side > generator > > is not only off but it is out we had a good lightning storm a bolt > struck > > very near our house the induced magnetic flux burned out the generator > > that's the bad news good news is that medtronic's got their design right > > and the generator failed to off in other words i am fine but must > have > > a new generator implanted > > ----- Original Message ----- > > From: "Rayilyn Brown" <[log in to unmask]> > > To: <[log in to unmask]> > > Sent: Tuesday, June 01, 2004 3:05 PM > > Subject: Re: Medtronic Magnets/George > > > > > > > George, > > > > > > there is no way I can get to Texas, I have a hard time getting to > > Scripps > > > clinic in La Jolla CA, my cg disappeared on Fri when I had botox > > injection > > > appt. > > > > > > I know how important it is to have the best drs, but did the best I > could. > > > My setting on right side (for left) is 3.1 on left side (For right) is > > 2.9 > > > Was told 3.5 is about as high as they go. When left side was higher I > had > > > permanent tingling in right hand. > > > > > > We think we know how I got turned off, but, yes, it was strange, since > it > > was > > > so hard to get back on - -5 tries. We (my cg andI) were at design > > center > > > in AZ where I bought new house picking out flooring, etc. Magnet was in > > my > > > purse which I wear around my neck to free hands for walkers, wheelchair, > > etc. > > > Purse has very thin synthetic material. She told me to give her dad a > > hug, he > > > lives there and has been helpful. Still its strange. Had to hit it > just > > > right. > > > > > > In Surprise, I'll be 20 min from Barrow Neurological Institute and 40 > min > > > from Mayo Clinic in Scottsdale. Now I'm 1 hr 10 min on good day from > > Scripps, 2-3 > > > on bad day Maybe I'll have better luck there, I hope so. > > > > > > Well, piano tuner, I used to play the piano. Wish I still could. > Thanks > > for > > > your info. It helps me get the whole picture. Ray > > > > > > ---------------------------------------------------------------------- > > > To sign-off Parkinsn send a message to: > > mailto:[log in to unmask] > > > In the body of the message put: signoff parkinsn > > > > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > > > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn