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----- Original Message ----- From: "Nancy S. deGrazia" <[log in to unmask]> To: <[log in to unmask]> Sent: Saturday, June 05, 2004 3:21 AM Subject: Re: My first fall > I just experienced my first falll and it was horrific. Somehow, in the > middle of the night, I managed to falll sufficiently hard, landing on my > face and ending up with bruises all up and down one side of the face,one > black eye, and two big goosebumps on my forehead. I looked like I had > been beaten soundly by some sadist. > > The weird part about it was that I have no memory of how or where it > happened. Probably the bathroom. But I seem to have gotten back into > bed (without waking my husband) and then, in the morning, took the dog > out for a walk without noticing anything about myself. Never looked in > the mirror. > > My husband saw me when I returned and turned pale. > > I have since been to my internist (for x rays to make sure nothing was > broken. There is a newly deviated septum, but nothing broken and no > blood--on the outside. The face turned purple immediately.. Then to > the neurologist who was very concerned and ordered an EEG, MRI, Sleep > study and neuropsychological study. All except the sleep study showed > nothing. The sleep study results have not been discussed with me yet, > but the neuro has said that there are signs of apnea. > > I will see the sleep specialist next week. Apnea as a reason for > sleepwalking and not remembering such a fall makes no sense to me. I > think they are reaching for an answer, but what do I know. I have been > known to sleep walk occassionally, with no damage,and sleep very soundly > indeed. My husband is worried sickk and seems to spend all night > listening for my movements and checking up on me. > > Have any of you had an experience like this? No change in my meds, > except a switch from Sinemet and Pemarin to Stalevo--but that was 6 > mnonths ago. > > I 'd appreciate hearing anything any of you can tell me. > Nancy S. deGrazia Nancy: My first fall was 4/6 at 2 am when I fell out of bed. My only injuries were a black eye and a bump on the forehead. At the time of the fall I was having a vivid dream with lots of thrashing about. I dreamed I was floating around out of control, and next thing I knew I was on the floor.i I too have a sleep apnea problem and am supposed to use a CPAP every night. But at the time of the fall, I had the CPAP off, as I tend to do. Last week, I had a similar incident, dreaming about fighting all kinds of opponents and doing a lot of thrashing. This time I was wearing the CPAP and did not fall. But the two incidents are a bit alarming. Your incident reinforces the idea that sleep apnea goes along with PD. I'd urge you to follow through with the sleep specialist and to use a CPAP if that's his/her recommendation. Incidentally, I've sometimes turned off the CPAP so it doesn't disturb ny wife's sleep - but she says she likes the "white noise" it makes which helps her sleep better. Merv Swing > > Tom McCreary wrote: > > >My first fall was not preceded by any warning signs. the phone rang and i > >sprung from > >my chair as usual and everything above my waist turned like i had > >anticipated it would. but my foot became "glued" to the floor. what a > >tumble! Fortunately, my problem is known as "start hesitation". Typically, > >it is he first indicator that i am "off". it only occurs until i take the > >good sized step then im on my way as normal until....if i stop or slow down > >the effort to take the first step begins again. the real curious dimension > >to this is the unipaired ability of walking backwards. this direction > >doesn't seem to be effected by the > >hesitation nor am > > i confined to the short shuffle steps. I don't try this in > >public places due to me backward balance is so compromised. > >no freeing in mid-stride yet but i have read once falling begins more than > >likely it can be added to the package. > >tom > > > >----- Original Message ----- > >From: "Maggie Tittle" <[log in to unmask]> > >To: <[log in to unmask]> > >Sent: Thursday, June 03, 2004 11:01 AM > >Subject: My first fall > > > > > > > > > >>I know that last week I reported that Stanford said i wasn't progressing, > >>but tipped over to today. I've " Weebled" before, but I've always been > >>quicker than gravity. Not today. I went to step around something, and > >> > >> > >lost > > > > > >>my balance. My hand wasn't fast enough to grab anything, and over I went. > >> > >> > >I > > > > > >>landed on our freestanding fireplace, so I didn't go all the way to the > >>floor. The extent of my injury was a bruised ego. I shall wait and see if > >>this trend continues. > >> > >> Chris > >> > >>---------------------------------------------------------------------- > >>To sign-off Parkinsn send a message to: > >> > >> > >mailto:[log in to unmask] > > > > > >>In the body of the message put: signoff parkinsn > >> > >> > > > >---------------------------------------------------------------------- > >To sign-off Parkinsn send a message to: mailto:[log in to unmask] > >In the body of the message put: signoff parkinsn > > > > > > > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn