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Ervin, Hi my name is Chris and I have a DBS. I too responded poorly to Sinemet and medications in general. It would take me 3 days of taking Sinemet to get an adequate response and another 3 to 4 days for it to wash out. Stanford had to do a special test in order to get me into the program. We worked it so that I was off medications for 5 days and tested, then on medication, for 5 days and tested again. To get an adequate response. I do not respond well to other medications either; mirapex, comptan, artane, etc. But I got into the program thanks to the determination of my doctors at Stanford. After having the DBS I was seen by Dr. Kholer of Mt. Sinai hospital in New York he decided that my Parkinson's was a result of Manganese Poisoning. Cases of Manganese induced Parkinson's are typically non responsive, but since I responded so well to the DBS that he was going to have to rethink some of the people he had turned down in the past for DBS. Best of luck in getting into the program. Chris At 12:53 PM 7/9/2004 -0700, you wrote: >Ray, I thought you had to respond favorably to Sinemet before you could be >evaluated for DBS. Like you, Parkinson medications did not work on me >therefore got a negative evaluation. Am I missing something? >Best wishes >Ervin McCarthy >----- Original Message ----- >From: "Rayilyn Brown" <[log in to unmask]> >To: <[log in to unmask]> >Sent: Thursday, July 08, 2004 1:45 PM >Subject: Re: Stimulator battery replace GUIDELINES > > > > Thanks to Barry for his idea of written instructions. If something goes > > wrong with me I am a dead duck in the "inland empire". I can't even >get > > prescriptions faxed to provider from my GP's office. They would have no >idea what > > to do or what kind of precautions to take if I end up in the ER for some > > reason. I'm not having a mammogram, that's for sure. > > > > To Donna, I have been trying to get that device you are talking about for >a > > year now from my neurosurgeon in La Jolla. His new office help thinks I >am > > talking about being programmed. I have told my programmer who is in my > > neurologists office that I will bribe or pay her to get one for me since I >can barely > > speak and am alone. She says my Medicare and secondary insurance have >already > > paid for it. But I'm definitely out of the loop for the device. Think >when I > > had my 2 surgeries a year ago maybe they did't have it. > > > > Ray > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: >mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > >---------------------------------------------------------------------- >To sign-off Parkinsn send a message to: mailto:[log in to unmask] >In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn