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That's what we were told also. The ideal candidate for DBS is someone whose response to Sinement has been good but for whom the effect of that medication has started to fluctuate or are now seeing marked side effects. We have been told that the best a person can expect with DBS is the best they manifest when Sinement is working for them. Not everyone is a good candidate. We have heard this from several medical sources. Ted and Carole ----- Original Message ----- From: "Ervin McCarthy" <[log in to unmask]> To: <[log in to unmask]> Sent: Friday, July 09, 2004 12:53 PM Subject: Re: Stimulator battery replace GUIDELINES > Ray, I thought you had to respond favorably to Sinemet before you could be > evaluated for DBS. Like you, Parkinson medications did not work on me > therefore got a negative evaluation. Am I missing something? > Best wishes > Ervin McCarthy > ----- Original Message ----- > From: "Rayilyn Brown" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Thursday, July 08, 2004 1:45 PM > Subject: Re: Stimulator battery replace GUIDELINES > > > > Thanks to Barry for his idea of written instructions. If something goes > > wrong with me I am a dead duck in the "inland empire". I can't even > get > > prescriptions faxed to provider from my GP's office. They would have no > idea what > > to do or what kind of precautions to take if I end up in the ER for some > > reason. I'm not having a mammogram, that's for sure. > > > > To Donna, I have been trying to get that device you are talking about for > a > > year now from my neurosurgeon in La Jolla. His new office help thinks I > am > > talking about being programmed. I have told my programmer who is in my > > neurologists office that I will bribe or pay her to get one for me since I > can barely > > speak and am alone. She says my Medicare and secondary insurance have > already > > paid for it. But I'm definitely out of the loop for the device. Think > when I > > had my 2 surgeries a year ago maybe they did't have it. > > > > Ray > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn