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Hoyt, Rebecca wrote: > Hi everyone, > > I'm a graduate student in speech-language pathology and I'm currently taking a summer class in Augmentative and Alternative Communication. We're required to do a project and I picked Parkinson's Disease (my gradmother has Parkinson's) to learn more about it. > > So, below are some questions, a survey of sorts. If you could answer them, I'd really appreciate it - it shouldn't take long. You can either send them to my e-mail ([log in to unmask]) or reply to the listserv. > > Thanks so much! > > Have a good day, > Becky > > 1. Have you ever (or are you currently) seeing a speech-language pathologist (SLP) for therapy? Has it been helpful? If so, in what ways? > I HAVE SEEN SLPS MAINLY FOR SWALLOWING EVALS. > 2. Have you ever been referred to a SLP? YES by the rehab chairman and past neuro. > > 3. Have you ever gone through the Lee Silverman Voice Therapy program for individuals with Parkinson's? NO If so, was it helpful? If so, in what ways? > I FIND THAT SOME LAYPEOPLE TRY TO TEACH THEMSELVES ABOUT THE PROGRAM AND I AM CONCERNED THAT IT MAY NOT FULLY BENEFIT THE PATIENT. > 4. Are you aware of AAC options for those with Parkinson's? I HAVE TRIED MANUAL SMALL (5x7) BOARDS WITH 1 1/2 PICS SPACED APPROX.2 INCHES APART. I USE PICS OF WATER, DOCTOR, TOILET, YES/NO HEADS WITH ARROWS, CHICKEN (FOOD THAT I CAN EAT), AND DIAGNOSIS > I FIND THAT CAREGIVERS DO NOT KNOW HOW TO PROGRAM ELECTRONIC DEVICES AND/OR HAVE THE FUNDS NECESSARY TO PURCHASE THEM. > 5. Would you be interested in an AAC device if it could help you communicate better with those around you? I WOULD LOVE ONE THAT IS LIGHT WEIGHT. If not, why? > > 6. Do you ever have trouble communicating with others? If so, in what situations? (in the community, at home, in noise - some possible examples) > YES . MY VOLUME IS SOFT AT TIMES AND SENTENCES TRAIL OFF. I ALSO HAVE DIFFICULTY BREATHING SO I HAVE TO REST WHEN SPEAKING DURING MID STREAM OF SENTENCES. I HAVE FLUNC. IN BP AND HR AND MEDS WEARS OFF. > 7. Do you ever avoid social situations because of communication difficulties? If so, which ones? (church, grocery store, gatherings - some possible examples) > NOPE :) > 8. Have you tried an AAC device? If so, what kind? What was it lacking, what were the benefits? > YES. I DID TRY A HEAD POINTER. MY HEAD TREMORS TOO MUCH FOR IT TOO WORK PROPERALLY ON MY LAPTOP. > 9. Do you currently use an AAC device? If so, what kind? > MANUAL. SELF MADE. WHEN I CAN NOT SPEAK. SETTINGS - HOSPITALS, ER SITUATIONS. IF IT IS TOO NOISY AND I WANT TO COMMUNICATE TO SOMEONE WHAT I WANT. > 10. How do you resolve communication difficulties? (i.e. when you can't get your message across verbally, what other methods do you use?) > I EMAIL, FAX, PRESS THE INTERCOMM BUTTON THAT BEEPS AND/OR USE MY EYES. > 11. Have you ever 'given up' trying to communicate a message to someone because they aren't understanding? How frequently has that/does that occur? > nancy m > Again, thanks! > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn