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My mother woke up two days ago with a sore throat. Her caregiver brought her to the doctor's office. While she was there she passed out and it was difficult to feel her pulse. After she came to, we took her to the hospital to rule out any heart problem. In the hospital I was scolded because I was giving her medication. I told the nurse very forcefully..."I am in charge of my mother's well being and I will give her what I need to to keep her well". From previous experience I knew that patients are never given their meds on time, if at all. If they nurse doesn't have one of the meds at the moment..they just skip it. The doctors and nurses were all very nice BUT the system isn't set up to deal with PD patients especially elderly ones with dementia. AS we all know, It ios crucial to give PD patients their meds on a fairly tight schedule. In my mother's case, she takes carbidopa 25/100 and sinemet 25/100 ER at the same time. Since they are both carbidopa, the hospital only gives her one pill no matter what we explain or insist on. The internist ,who was covering for our doctor, didn't write it down correctly after I explained it carefully. They didn't have a bed available for her so she remained in the ER room for 24 hours. She wasn't able to take her normal naps and was overly stimulated. I did make sure they provided a FREE one on one caregiver for her so that ours could go home and get some rest. I've gotten very good at doing this. My mother is fine, no heart condition. She has an infection that might be pneumonia. She's on an antibiotic that I made sure was not one that makes a PD patient dillusional....some do like Leviquil. I made it clear that I was going to bring her right home without any additional hospital stay. My mother was totally dillussional from it all. I know that she will be okay. She is already coming back. I have the name of someone in administration that I am calling tomorrow. I want to see changes in PD patients' care. I want the nurses and doctor's to be trained to handle these patients in the manner that they need to be dealt with. If meds cannot be given on time, atleast administer these patient's meds first because they will greatly suffer if they are too late. If at all possible, they need to put these patient's somewhere less chaotic and noisy. I can go on and on. I will make sure that things change at Huntington Hospital, on Long Island. Is there any literature that anyone knows of that we can all give to our local hospitals to educate them? I don't believe that we should allow them to contnue treating PD patients like this. My Best to all... Linda c/g to my mother Esther dg 11 years ago almost 83 ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn