Dear Shekhar,
The 15% who benefit from DBS I'm not certain about.
Amongst the Parkinsons community in my corner of the world anyway, those that have had DBS I either know or know of and they've all benefitted from the procedure.
I certainly wasn't ready for DBS till the captain of the ship (me) felt it necessary so if anybody asks me when the best time to have it is, my answer is "when you're ready."
I didn't have a neuropsychologist test me for cognitive decline. I'd had it done before. I think when it was done it was for research purposes so that may have been used.
I believe however, it's usually done pre operatively.
As for pergolide I feel much better since stopping it, more able to sleep and concentrate. Soon I'm to have an echogram to see if there is any valve damage.
There are other agonist drugs eg cabaser. I don't take any drugs now so can't comment on cabasers effectiveness.
Cheers,
Lee
Chandrashekhar Nagarkar <[log in to unmask]> wrote:
I would like to know why only 15% of pwps benefit from DBS
also what do the psycho cognitive tests determine?
I am 56 diagnosed 7 years ago with left side rigidity, now lead a reasonable life with 7 doses of Stelavo (L dopa25/100 + comt ) plus pergolide (1mgX7).
I am wondering if early dbs is possible and desirable to reduce the drug intake and thus save my heart form the effects of pergolide, Would some one please comment and give me the benefit of their experience. I feel I am deteriorating faster and feel this is my only route to survive until the "cure"
Shekhar
Manchester ,UK
----- Original Message -----
From: M.Schild
To: [log in to unmask]
Sent: 27 September 2004 07:44
Subject: Re: DBS for PD and Dystonia: Long term Results
>> "Are there any studies that look at the benefits of having
>> DBS before vs
>> after levadopa treatment? Or is DBS only tried after levodopa no longer
>> is effective?"
> The short answer is no. DBS has only had wide spread use for about the
> last 5 years.
In fact, in France they have been performing DBS for about 10 years now. They
started doing it mainly on advanced cases. Now the tendency is to do it on
moderate cases and not after 70 years of age and never without extensive
psycho/ cognitive tests.
They reckon it can benefit about 15% of all PWPs
Maryse cg JOhn 75,15
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
---------------------------------
Find local movie times and trailers on Yahoo! Movies.
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
