 |
 |
Raj could you give more information on Ayurvedic. The results sound good. Ervin McCarthy ----- Original Message ----- From: "Brightline" <[log in to unmask]> To: <[log in to unmask]> Sent: Saturday, October 02, 2004 8:24 AM Subject: levodopa: the standard against which all is judged??? > Hi: > I have also to agree that levodopa is not the cure for PD. It is neither > considered therapy. It simply gives temporary symptomatic relief for a few > years and it also has its own problems such as inducing dyskenesia. The > literature is full of the causes of dyskenesia. > For this reason, I avoided sinemet when it was prescribed for me four > years ago. I took the controversial route of ayurvedic medicine and after > two years on ayurvedic medication, I am happy to say, I have not developed > distonia or dyskenesia and I am still enjoying reasonable level of postural > stability and have virtually no bradykinesia. I am still able to walk 2km a > day. I am able to work in my computer for 6-8 hrs / day, albeit with some > difficulty. > I am not sure if I will recover completely from the symptoms of PD. But, > I do not believe that it is impossible, given the report a couple of months > ago , that in some studies people in placebo showed remarkable recovery, > comparable to the people that were on the drug. > Raj > ************* > ----- Original Message ----- > From: w g <[log in to unmask]> > To: <[log in to unmask]> > Sent: Friday, October 01, 2004 11:14 PM > Subject: levodopa: the standard against which all is judged??? > > > > hi wendy, > > > > i am new to the list and haven't seen your previous > > posts - it is good to know i am not the only one > > disturbed by this. > > > > levodopa being held up as the standard against which > > other therapies (at least the brain surgery therapies) > > are judged is troubling to me because it means that if > > something almost measures up, but not quite, the study > > may be deemed a failure, the therapy may be dropped, > > and levodopa and dyskinesia remain the *best* therapy, > > rather than another option that *doesn't cause > > dyskinesia* being made available. > > > > does anyone know whether, in clinical trials, > > participant satisfaction is taken into account in the > > judging of the success/failure of the trial, and if > > so, to what degree? > > > > mackenzie > > > > > > --- Wendy Siegel <[log in to unmask]> wrote: > > > > > That is the point I was trying to make. Thanks for > > > putting it so > > > clearly! > > > > > > Wendy > > > > > > -----Original Message----- > > > What I would like to know is, given that there is a > > > 30% chance of > > > developing dyskinesia after two years of levodopa > > > therapy, and a 50% > > > chance after five years of levodopa therapy, is > > > anyone else disturbed by > > > levodopa being held up as the "best" treatment for > > > PD, the treatment > > > that must be surpassed (by therapies requiring brain > > > surgery, at least) > > > in order for them to be considered successful? > > > > > > If you were given a choice between 5 years of > > > levodopa-level symptom > > > relief with a 50% chance of having developed > > > dyskinesias by the end of > > > that period, and 5 years and maybe more of somewhat > > > less than > > > levodopa-level symptom relief, with the risks of > > > brain surgery but > > > *without* the risk of dyskinesias, which would you > > > choose? > > > > > > free storage! > > > > > > > > ---------------------------------------------------------------------- > > > To sign-off Parkinsn send a message to: > > > mailto:[log in to unmask] > > > In the body of the message put: signoff parkinsn > > > > > > > > > > > > > __________________________________ > > Do you Yahoo!? > > Y! Messenger - Communicate in real time. Download now. > > http://messenger.yahoo.com > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn