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FWD with permission to post ----- Original Message ----- Sent: September 25 From: anonymous Subject: PIEN AND YOUR RESEAECH > I am not sure if you especially wanted replies to go to the list or not. > > I rarely write to the list, but I read posts and have made some very good friends through PIEN. I was diagnosed at the beginning of 2000, but like many others, recognize difficulties going back 4-5 years before that. I joined the list about one week before the infamous 9/11. According to many posts I have read since, that was a bit of a turning point. I'm not sure at all how PIEN functioned before that time but it has never seemed to fit the description I first encountered in a long forgotten bulletin. > > I joined to learn about PD and about how others cope with it. I have learned much over the years but I delete heavily now. There always seem to be a few individuals who use the list to vent or to politicize or perhaps as a shield against loneliness. At this point in time, the list seems to be about 25% information and 75% politics, quips, arguments, personal attacks and opinion. As such , I think it has lost much of it's value to those who are members of the 25% population. > > I have time to skim and do not leave but no longer have much need for PIEN as a source of information. > anonymous > ----- Original Message ----- Sent: Wednesday, September 22, 2004 Subject: research about the nature of PIEN snip--- > I am seeking evidence in how PIEN members view the nature of the >PIEN list itself, its purpose and benefits. As per the PIEN List Charter, > will remove all names from quotes and will also protect the personal >privacy of individual members by not including any intimate details of >anyone's personal health care. At the completion of my research, >I will make my document available to all PIEN members in the form of a blog >that will hopefully invite discussion. > > The writing of this project is my way of academically documenting the > incredible community at work and play within the Parkinson's International > Exchange. It is also my way of giving thanks for how it helped my mother and our family when we needed it most. ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn