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There is a new web site created by research  participants and family
members of the Phase 1 and 2 GDNF trials. As you may know Amgen has
halted the current trial, due to possible, yet so far unproven safety
concerns and results after 6 months that show no difference between the
treatment and control groups, according to their analysis. The patients
who received GDNF believe they have benefited from it, but Amgen has
stopped GDNF treatment from all phase 1 and 2 subjects.
Appeals for continued treatment under the FDA's Compassionate Use
guidelines are being filed on behalf of these patients.
The web site contains the trial participants' very moving  stories and
has  recently added their replies to Amgen's concerns.
Please read their testimonials.
If you would like to send a note of encouragement to these folks, you can
contact them at:

[log in to unmask]

Thanks,
Linda Herman


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