I Agree with Ray. But, I also do not trust any of the drugs approved by our revered FDA! The whole pharmacy world is out for our money. And FDA doesn't seem to be an exception. Look how long does it take to agree upon the uselessness of sinemet. Still papers are published in favor of and against L-dopa! Everybody seems to care about the money they can make or the so called ethics! Raj *********** ----- Original Message ----- From: Rayilyn Brown <[log in to unmask]> To: <[log in to unmask]> Sent: Saturday, December 25, 2004 12:15 AM Subject: Re: GDNF letter writing campaign/MaryAnn > Mary Ann > as a PWP my life has been ruined, a living death for 9 years, and I would > take anything that would give me a moment's relief. There are no "safe" drugs > anyway, in my opinion. > > I hoped I would die when I had my DBS surgeries. I know everyone perceives > their situation differently, but PD is the worst incurable disease I have ever > had. Ovarian cancer was a breeze compared to this. Do you think I would be > afraid of what a drug could do to me after what PD has done? > > People in that study should have the right to decide for themselves and they > want that treatment. This is kind of like denying marijuana to dying cancer > patients. Most approved PD drugs suck anyway with bad side effects. Also, the > longer I live and talk to people with really serious medical problems the more > I'm reminded that really very little is cured or helped except polio and TB. > Ray > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn