 |
 |
Monica, your letter sounds so familiar somewhat over actives , multi tasking and no plans to slow down with retirement, just switch to the best and most enjoyable projects. Then the slow lethargy, the subtle clumsines, perhaps some dsepresion at your own "laziness" that you cannot shake or explain... when the tremor and fatique force you to a doctor and you wend your way thru a maze of specialists and mis diagnosis til finally someone tells you you have parkinsons. thse meds work and you wonder wher the last decade went . Then is finaly hits This is progrsessivse , its for real and its happening stil beneath the meds. I too have spent years accumulating the yarns the embroidery , the spining wheel, loom , paints , it is so hard to toss them away. ----- Original Message ----- From: "Monica Bolin" <[log in to unmask]> To: <[log in to unmask]> Sent: Wednesday, December 29, 2004 6:47 AM Subject: Abilities > Hello to all, I am new to the list but I have recieved some interesting and > heartfelt messages from some of you in the group. I wanted to give you a > list of my baseline abilities right now. > > I know that I have a severe case possibly Parkinson's Plus, but I am not > positive. Without medication I had some severe problems with balance, > central nervous system problems, etc. I started on Requip and am at the 2 mg > dose so far. It has stopped my falling, and some of my tremors and > dizziness, speech problems, CNS problems. I may need to go up on it at my > next visit. I also found out what it is like to sleep again. > > Ten years ago I was a Martha Stewart type, entertaining, parties and the > like. I did all the sewing, haircutting and such for my entire family before > I started working full time. I also took up several hobbies such as > beadworking, with tiny seed beads, making leather goods and such, and I even > made tents out of canvas. > > When I went back to school I set aside some of this and became a nurse. I > had less time but I did things like shingle my roof on my days off. (My > husband is disabled.) I took in two foster children and had time to do my > family's genealogy. > > Now I find that it is a real effort to get to work, and stay all day. > Thankfully I have graduated to a desk job, but there is no way I can "be a > nurse" anymore. When I am stressed or tired, the shaking comes back full > force, as though I have no medication at all. Patients tend to draw away > from a shaking hand. > > I think the saddest loss for me is the art/craft work I had planned to do > when I retired. I bought sets of paints I probably will never use, and tons > of beads and embroidery thread I may never use, due to this new "thing" I > have. I fear that when I can no longer work, which won't be much longer, I > think, I will also be unable to do the things that give me joy. > > So this list gives me an outlet to see what others are feeling and doing and > I am also reading and getting encouragement from those of you who can still > do things you enjoy. I am thinking that this "thing" must attack the most > intricate and talented brains of all- yours and mine!! > > Sincerely, Monica > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn