 |
 |
Hi Monica, i have found that I can still do a few things well , yet i think of my woodworking and the creative things which gave me joy All the joy is not gone from my life. I still can read but at a much slower pace than before PD I still make sourdough bread occasionally 12/30/2004, you wrote: >Monica, your letter sounds so familiar somewhat over actives , multi tasking >and no plans to slow down with retirement, just switch to the best and most >enjoyable projects. Then the slow lethargy, the subtle clumsines, perhaps >some dsepresion at your own "laziness" that you cannot shake or explain... >when the tremor and fatique force you to a doctor and you wend your way >thru a maze of specialists and mis diagnosis til finally someone tells you >you have parkinsons. thse meds work and you wonder wher the last decade went >. Then is finaly hits This is progrsessivse , its for real and its happening >stil beneath the meds. >I too have spent years accumulating the yarns the embroidery , the spining >wheel, loom , paints , it is so hard to toss them away. >----- Original Message ----- >From: "Monica Bolin" <[log in to unmask]> >To: <[log in to unmask]> >Sent: Wednesday, December 29, 2004 6:47 AM >Subject: Abilities > > > > Hello to all, I am new to the list but I have recieved some interesting >and > > heartfelt messages from some of you in the group. I wanted to give you a > > list of my baseline abilities right now. > > > > I know that I have a severe case possibly Parkinson's Plus, but I am not > > positive. Without medication I had some severe problems with balance, > > central nervous system problems, etc. I started on Requip and am at the 2 >mg > > dose so far. It has stopped my falling, and some of my tremors and > > dizziness, speech problems, CNS problems. I may need to go up on it at my > > next visit. I also found out what it is like to sleep again. > > > > Ten years ago I was a Martha Stewart type, entertaining, parties and the > > like. I did all the sewing, haircutting and such for my entire family >before > > I started working full time. I also took up several hobbies such as > > beadworking, with tiny seed beads, making leather goods and such, and I >even > > made tents out of canvas. > > > > When I went back to school I set aside some of this and became a nurse. I > > had less time but I did things like shingle my roof on my days off. (My > > husband is disabled.) I took in two foster children and had time to do my > > family's genealogy. > > > > Now I find that it is a real effort to get to work, and stay all day. > > Thankfully I have graduated to a desk job, but there is no way I can "be a > > nurse" anymore. When I am stressed or tired, the shaking comes back full > > force, as though I have no medication at all. Patients tend to draw away > > from a shaking hand. > > > > I think the saddest loss for me is the art/craft work I had planned to do > > when I retired. I bought sets of paints I probably will never use, and >tons > > of beads and embroidery thread I may never use, due to this new "thing" I > > have. I fear that when I can no longer work, which won't be much longer, I > > think, I will also be unable to do the things that give me joy. > > > > So this list gives me an outlet to see what others are feeling and doing >and > > I am also reading and getting encouragement from those of you who can >still > > do things you enjoy. I am thinking that this "thing" must attack the most > > intricate and talented brains of all- yours and mine!! > > > > Sincerely, Monica > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: >mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > >---------------------------------------------------------------------- >To sign-off Parkinsn send a message to: mailto:[log in to unmask] >In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn