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We are raising some money for all the Parkinson orgs via the Unity Walk and
using our Parkinson Care Series.  This is  a set of 8 video tapes and a
CDROM 400+ page workbook.  Mostly, these are sold to long term care
facilities to ensure that PWP get good care, they have continuing education
credits for professionals.  They cost $250.00 for the facilities who buy
them.  Lots of individuals request them too, so we have been selling them
for $50.00.  If anyone wants to buy this series for $50, we will donate our
entire surplus of $15.00 (and that cost doesn't include the $140K we spent
producing this project) to the Unity Walk in the name of PIEN members.  If
you want more info, you can go to www.parkinsonheartland.org and click on
the Parkinson Care Series.  If you want to purchase on line, you can use our
regular donation page and just put "PCS/Unity Walk" in the "my gift is a
tribute to" box.  Feel free to email me off list at
[log in to unmask], though we are expecting a major ice storm on
Wednesday, so it may be Thursday before we reply!  Meg
-----Original Message-----
From: Parkinson's Information Exchange Network
[mailto:[log in to unmask]]On Behalf Of Rick McGirr
Sent: Monday, January 03, 2005 9:05 AM
To: [log in to unmask]
Subject: Re: Cramped Toes


I am interested in this issue of cramped toes, because it touches a
question I have; I have been on 25/100 Sinemet for a couple of years
now, along with an ever increasing amount of Requip.  I do get what
could be described as tremor of a low frequency (reps per min.) in my
leg, and especially when I get behind in my dosage, my foot will
cramp, and my toes will curl up, like the wicked witch of the west.
The question that has been raised in my mind, thanks in part to some
on the listserv who resist taking the typical PD drugs, is: how much
of what I feel is PD, and how much is side effect from the drugs?

This question is unapologetically meant to stir debate.  I also have
questions for those of you  who do without the drugs.  How do you
cope?  What else can help you control your symptoms?  Are there
doctors, neurologists, specialists out there that agree and support
other approaches to PD care?  Besides the universal concepts of good
nutrition and ridding the system of toxins and impurities, what can I
gain by implementing concepts from non-trad systems?

Wishing all a fulfilling, effective, and happy 2005!

Enjoy!
Rick McGirr
Email: [log in to unmask]

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