Dear Geof:
I am getting Ayurvedic medicine from Dr. Panei from Ahmedabad, India. You can find info on this from the internet by searching "Dr. Paneri'. His email address: [log in to unmask]
I am also taking the following in addition to the medicine from Dr. Paneri.
I am sharing my personal experience with you. Please do not take this as professional advice, since I am not a qualified Medical practitioner. Please do consult a qualified individual before you start taking any of these items.
I started adding one by one when my symptoms were beginning to get worse. Also, I increassed the dose slowly as required.
These are:
Acetyl-l-carnitine 3 x 500 mg Most of these have anti-oxidant, anti-inflammatory, anti-cancer, neuroprotective and neuroregenerative properties.
L-carnosine 2 x 500 mg
Resveratrol 1 x 500 mg or Grape seed extract 1 cap on alternate days.
Glutathione - Reduced 1 x 500 mg
Co E Q 10 3 x 120 mg Protects against PD
NADH 5 mg Protects against PD
"Brain Essentials" from Swanson Nutritionals - This is the most important of all. 3 x 500 mg. Contains various vitamins, Phosphatidyl serine, anti-oxidants, and a time-tested ayurvedic herb.
Vit E 400 IU Potent anti-oxidant - reduced to 200IU recently.
Multivitamin
Green Tea Extract Protects against PD. 3 x caps per day.
I am also taking Quercetin 500 mg/day to keep my PSA level down.
However, in spite of all these, I still developed some shoulder pain. That is why I started taking Celebrex, which is a non-steroidal anti-inflammatory drug, just like ibuprophen (makes me fat and inceases my Blood pressure), aspirin ( I hate taking aspirin on a daily basis) or tylenol (makes my PSA level go high). I find celebrex 2 x 100 mg a day is suffcient to manage my pain. Celebrex also helpskeep my PSA level low. (That is why Celebrex 400 mg/day was given in the clinical trial for cancer patients. It backfired by affecting the heart)
Since the scare about NSAIDS and heart problems, I have reduced Celebrex from 200 mg/day to 100 mg/day. I am taking a little quantity of turmeric with sage tea. I also occasionally use over the counter Myoflex, a topical application for pain. In my opinion, pain in PD patients should be treated immediately. Increaed pain causes secretion of anti-inflammatory cytokines, which are known to aggravate PD symptoms. I think this is caused by these cytokines crossing the blood barrier and accelerating the death of neurons. In addition, it is also known that inflammatory cyokines attract the tissue stem cells to the inflammatory sites. This in general will retard the mobility of tissue stem cells from travelling to were they are needed. inflammation alaso causes production of Cox-2 enzyme, which is required for the progression of PD. That is why I am concentrating on relievingmy pain asmuch as I can, without aggravating other vital smptoms such as ourheart and blood pressu!
re.
I am also doing what nobody has tried with great benefit. I am listening toan audio tape everyday before I sleep. This sound uis supposed to increase in the alpha and theta waves in our brain, which is onducie for secretion of endorphins and thelike and help grow our neurons. I felt teh effect even after one day. The tape is called Mind Aerobics, obtainable from THE NEW YOU ENTERPRISES, 4720 SW washington, Suite 104, Beaverton, OR 97005. T: 503 574 3035, F: 503 6433114. Listening to this tape also induces anti-aging effect, and I find it gives more more energy on an eveyday basis. In general, I find that almost all the anti-aging natural biochemicals are good for PD.
You see that almost all my medications are natural biochemicals and are not synthetic. I think that western medicine is good for symptomatic relief but when start using them chronically for years on, our bodyreacts to them unfavourably.
My aim is to increase the survival conditions of our neurons, that are dying for unknwon reason. I am hoping that by altering the microenvironment of our brain cells that will favor their survival, we increase the chances of the renewal of dead neuron by our own tissue resident stem cells. Therefore, I am constantly on the look out for natural compounds, preferably herbal derivatives that would be of help to me. I start including them in my daily intake, only after thorough research.
I am sharing my personal experience with you. Please do not take this as professional advice, since I am not a
qualified Medical practitioner. Please do consult a qualified individual before you start taking any of these items.
Also, myentire life style has changed, definitely for the better. I eat a lot of nuts, almond, walnuts, sunflower seeds, walnuts, pumpkin seeds (for my prostate), and lots of fruits.I avoid tamarind, tomato, leukopene, yogurt, cheese, and egg plants. Take lots of vegetables, blue berries, raspberries, straw berries, beans, spinach and all other good vegetables. I stopped taking white rice but included cracked wheat, brown rye bread, a glass of French red wine in my daiy in take.
I believe there are natural ways we can definitely retard progression of PD. But, we have to search for them. No body is going to do that for us. We the patients are left on our own. Things are not going to change for better in the near future, due to the current political atmosphere, which seems inject religious philosophies into the health issues.
Wish you all the best.
Raj
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