 |
 |
Rick Sinemet only helped me on the first dose, but I took it anyway for about year, it didn't hurt. I stopped all PD meds til after my DBSs when I tried again. This time Stalevo made me nauseous. I noticed people on meds were complaining of same symptoms as me off meds. So I don't take any meds, but do get botox injections in my left dystonia ridden leg. The DBSs really made my tremors bearable, no meds ever helped. At least I don't have dyskinesias since I don't take Sinemet. I had ovarian cancer when I was 43 and became allergic to chemo which I had to repeat for docs ro prove to them that turning red, white and gray and having huge hematomas was not due to allergy to shrimp or dermatological problem, but the chemos. I don't take meds that don't help me. Not this time around. I think PD meds suck, but they do help some people,I am not one of them. Yes, it is very difficult to cope. This is why I am such a Bush-hater. I guess it's one of my coping skills. He should have this disease instead of dry drunk syndrome and megalomania . You are not nuts. Ray ----- Original Message ----- From: "Rick McGirr" <[log in to unmask]> To: <[log in to unmask]> Sent: Wednesday, March 30, 2005 7:23 AM Subject: I must be nuts. Or am I? > In light of the bad side effects over time, and the fact that I'm > tougher than I used to be, and the fact that I'm handling my symptoms > pretty well so far, in consultation with my neurologist, I am > considering weaning myself off of Sinemet, at least temporarily. I'm > leaving the rest of the meds alone for now. (I'm on Requip and > Selegiline.) > > Is there anyone on the list who had tried this before? How did things > change for you? Did you keep taking other meds? How long did you > last? Are you still off the stuff? What other coping skills have you > developed? Have I gone totally stark-raving looney-tunes? > > Enjoy! > Rick McGirr > Email: [log in to unmask] > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn