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I have only had PD for 18 years.I used to have dyskinesia that on na scale of 1 to 10 my dyskinesia that was about 13. then I had a bilateral Pallidotomy also in 1995 and that ended my dyskinesia then a few years lateral i had about I to 2 dyskinesia so my Doctor prescribed Amantadine yours and His David L Moreland At 05:00 PM 3/18/2005, you wrote: >Ariela, > >Nancy has had PD for 30 Years. She had bilateral pallidotomies in >1995. She has had dyskinesia for 20 years. The pallidotonies virtually >eliminated the dyskinesia in 1995. Over the past 10 years some >dyskinesia has returned and amantadine manages it quite nicely. >She has used amantadine on and off for at least 20 years. In the early >days it seemed to work best by using it for 6-12 months then removing >it for a month then resuming. I have never heard a scientific basis >for our success. The recent change to stalevo and parcopa have worked >very well. > >Nancy is now paralysed from the waste down and was hospitalized when >we made the switch. The paralysis is a long story of PD, scoliosis and >back surgeries and not a typical PD story. > > >Regards, >Bob > >Bob Martone >[log in to unmask] >http://www.shawus.com/bmartone > >-----Original Message----- >From: ariela [mailto:[log in to unmask]] >Sent: Friday, March 18, 2005 2:08 AM >To: [log in to unmask] >Cc: [log in to unmask] >Subject: Re: (my progress report) / AMANTADINE... ? / calibration >(Bob) > >thanks, bob. > >can you please tell if the amantadine indeed controls nancy's >dyskinesia? and how long has she been taking it? > >from the numbers you quote, wow, she's really reduced her levodopa >intake by quite a bit! how long has she had PD, and how long has she >been on this new regimen now? > >regards, >ariela > >==== > > > Hi, > > > > Haven't had much to say in a long time. But do have recent >experience > > with Stalevo and long term experience with amantadine. Stalevo seems > > to work very well for my wife Nancy (3d week now). She was able to > > reduce the sinemet intake from five 50/250's and one 25/100 to four > > Stalevo 150's and one Parcopa 100 and occasionally a Parcopa rescue. > > She has eliminated four 200 MG Comtans. She takes three or Four > > Amantadine 100 MG per day to manage any dyskinesia side effects. > > > > Summary:went from 1350 MG sinemet to 600 MG Stalevo and 100MG >Parcopa. > > > > There are many other variables that I can't get into now but maybe > > this will help. > > > > Bob > >---------------------------------------------------------------------- >To sign-off Parkinsn send a message to: mailto:[log in to unmask] >In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn