 |
 |
On the contrary, Nancy, we need to hear about trouble along with success. These drugs are very complex and subtle, and since we take them in lots of different combinations, with lots of different results, the more info we have the better. I myself, since I still feel capable enough, am trying to titrate off Sinemet. A little rough going so far, but am able to compensate with relaxation breathing, stretching, and exercise. I might add, a little wine, and then perhaps a little more, later in the day, helps the muscles to relax, and the mind too. From what I hear, I like the long-term health effects of a good Shiraz better than Sinemet. Enjoy! Rick McGirr Email: [log in to unmask] ----- Original Message ----- From: "Nancy S. deGrazia" <[log in to unmask]> To: <[log in to unmask]> Sent: Tuesday, March 15, 2005 10:45 PM Subject: Re: (my progress report) / AMANTADINE... ? / calibration > Arelia - i was on amantadine and sinemet (and mirapex and one other > agonist) for many years . I was switched to stalevo in april or so and > "crashed" in august. Hallucinationsm, sleepwalking, reduceed cognition > and both dyskinesia and freezing all resulted. I don'tr know -- and > never will know -- what to blame. but I am now back on sinemet (900 mg > instead of the 250 i used to be on) and no more stalevo, amantadine or > any othr agonist. I still freeze a lot, and my dyskinesia is sometimes > bad, but the mental stuff has gone. I have changed movement disorder > specialists but I am not sure that was wise. I was so frustrated it > seemed time for a change. > > I think my comments are no help at all as I have not resolved anything, > but I have been there > > Nancy deGrazia. > ariela wrote: > > >rick, > > > >a new movement disorder neurologist we've now been seeing at mount sinai in new york has told us that amantadine is the drug of choice for dealing with dyskinesia. it's the first i hear this take about this little-used drug.... but we're still keeping this option open as my PWP is now trying stalevo (after 4 years on sinemet + requip). he's having an awful time just getting calibrated -- he moves instantaneously between long and painful freezes to awful states of badly spastic dyskinesia. there's just never a simple 'quiet,' 'calibrated' time. it goes without saying that the dosages and frequency have been tweaked and re-tweaked, to not much avail... :( > > > >does it sound familiar to you, or anyone on the list? can anyone please share what you do/have done/know about it? ( > > > >many thanks, > >ariela > > > >==== > > > > > > > >>But I just figure it might be worth a little extra pain in order to put off those nasty > >>diskenesias.... > >> > >>Enjoy! > >>Rick McGirr > >> > >> > > > >--------------------------------------------------------------------- - > >To sign-off Parkinsn send a message to: mailto:[log in to unmask] > >In the body of the message put: signoff parkinsn > > > > > > > > > > -------------------------------------------------------------------- -- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn