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Bob - I remember meeting you and your wife at a PD meeting. I believe Kathrynne Holden was there speaking about PD and nutrition. I'm sorry to hear she's paralysed. I admire you taking care of her the way you have over the years, and it must of been a heart-rendering decision to have her hospitalized. Are you still living at Huffman? Very best wishes to you. Jo Ann from Houston On Fri, 18 Mar 2005 19:00:44 -0600 Bob Martone <[log in to unmask]> writes: > Ariela, > > Nancy has had PD for 30 Years. She had bilateral pallidotomies in > 1995. She has had dyskinesia for 20 years. The pallidotonies > virtually > eliminated the dyskinesia in 1995. Over the past 10 years some > dyskinesia has returned and amantadine manages it quite nicely. > She has used amantadine on and off for at least 20 years. In the > early > days it seemed to work best by using it for 6-12 months then removing > it for a month then resuming. I have never heard a scientific basis > for our success. The recent change to stalevo and parcopa have > worked > very well. > > Nancy is now paralysed from the waste down and was hospitalized when > we made the switch. The paralysis is a long story of PD, scoliosis > and > back surgeries and not a typical PD story. > > > Regards, > Bob > > Bob Martone > [log in to unmask] > http://www.shawus.com/bmartone > > -----Original Message----- > From: ariela [mailto:[log in to unmask]] > Sent: Friday, March 18, 2005 2:08 AM > To: [log in to unmask] > Cc: [log in to unmask] > Subject: Re: (my progress report) / AMANTADINE... ? / calibration > (Bob) > > thanks, bob. > > can you please tell if the amantadine indeed controls nancy's > dyskinesia? and how long has she been taking it? > > from the numbers you quote, wow, she's really reduced her levodopa > intake by quite a bit! how long has she had PD, and how long has > she > been on this new regimen now? > > regards, > ariela > > ==== > > > Hi, > > > > Haven't had much to say in a long time. But do have recent > experience > > with Stalevo and long term experience with amantadine. Stalevo > seems > > to work very well for my wife Nancy (3d week now). She was able to > > reduce the sinemet intake from five 50/250's and one 25/100 to four > > Stalevo 150's and one Parcopa 100 and occasionally a Parcopa > rescue. > > She has eliminated four 200 MG Comtans. She takes three or Four > > Amantadine 100 MG per day to manage any dyskinesia side effects. > > > > Summary:went from 1350 MG sinemet to 600 MG Stalevo and 100MG > Parcopa. > > > > There are many other variables that I can't get into now but maybe > > this will help. > > > > Bob > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn