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Steve You describe the need for decent PD meds. With my very first dose of Sinemet in 2000 I was "ON", but it never helped again even though I took it for a year CR 4x daily 50/200 I think it was a blue pill. I don't take it at all. Nothing happened when I quit. I tried regular Sinemet and Stalevo after my DBS surgeries in 2003 and neither helped. Stalevo made me nauseated. I know they really help some people, but I think PD meds are very problematic. Ray ----- Original Message ----- From: "Steve Forslind" <[log in to unmask]> To: <[log in to unmask]> Sent: Friday, April 08, 2005 4:06 AM Subject: Re: I'm off the stuff. > Question from a newbee here. > > Hi, my name is Steve. I am 62 years old and I was diagnosed with > Parkinson's at 60. I was originally on Requip which worked extremely well > symptomatically, but I complained of minor side effects, so at my request > my neurologist switched me to Sinemet and Mirapex. The symptoms (right-arm > tremors & stiffness, shuffling walk) have gotten slightly worse (than when > originally diagnosed) over time, with far too little of the alleged "on" > and "off" times I hear about. Basically, the Sinemet and Mirapex don't > seem to have much, if any, affect at all, but back then I had no idea that > my med choices were so limited. > > > > It needs to be said that shortly after changing meds I retired from > working as a maintenance mechanic on the midnight shift, so in addition to > changing meds I totally changed my schedule and lifestyle. > > > > Due to these life changes, I've asked my neurologist a couple of months > ago to put me back on Requip; I think I'm in a better position to handle > any minor side affects that might occur. Basically he ignored my request, > and said "See you in July". He displayed no interest in a med change for > me. I didn't pursue it; I had severe low back pain issues at the time. > > > > Dosage: (1) 25/100 Sinemet 3x day, (2) 0.25 Mg, 3x day > > > > Questions: > > > > Can one go back to Requip from Sinemet & Mirapex successfully, or is it a > one-way street? I have no clue. The Sinemet and Mirapex seem to be causing > (in my opinion) more problems than they're treating. Since I started > taking them, I've developed a problem in my lower back that causes great > pain relieved only by two things; 6-8 hours of sleep, and not taking the > PD meds for that same period of time. Right now it's almost 11 hours since > I took the Sinemet & Mirapex, and I feel the best I'll feel all day. It's > downhill from here. > > > > Should I seek the opinion of another neurologist? Mine doesn't seem to > have time for me, let alone any real interest in my welfare. > > > > Rick: Why'd you get off the Sinemet & how'd you do it? > > Rick McGirr <[log in to unmask]> wrote: > Today is day 4 off of Sinemet. Weaned myself right down to zilch. I > was on a low dose, 25/100 3 times a day. Symptoms a tiny bit more > pronounced. They're not as bad as I thought they might have been. > Attitude much more resilient. I can handle this. For now... > > Enjoy! > Rick McGirr > Email: [log in to unmask] > > Contact your congressperson and tell him/her to support H. R. 810, > which would support ESCR using donated, leftover embryos from > fertility clinics that would otherwise be discarded. > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn