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The problem is that PD is a very individual disease - some people's
symptoms progress rapidly and others slowly, so it is hard to say if any
intervention drug or natural really has much of an effect or if the
person's Parkinson's would progress at the same rate without them.

Wendy

-----Original Message-----
From: Parkinson's Information Exchange Network
[mailto:[log in to unmask]] On Behalf Of MyFirstname
Mylastname
Sent: Sunday, April 10, 2005 6:28 PM
To: [log in to unmask]
Subject: Re: over medication

Hi,

My beloved husband Geoff was diagnosed with PD last September at the age
of
57 and so far he has avoided taking any meds. Neither one of us likes
the idea
 of taking medication, especially with the possibility of toxic side
effects
and  very limited effectiveness. We've always preferred to seek out
natural
remedies  first. We figure that if we don't have any success with these,
then
there is  always plenty of time to start taking the meds later.

Straight away after his diagnosis I found the following reference to
broad
beans (aka fava beans) at _www.wholisticresearch.com_
(http://www.wholisticresearch.com) :   "L-dopa is actually found in some
leguminose plants of the Vicia
Fava (broad  bean), and researchers are reporting that this plant can
replenish brain  deficits of L-dopa more quickly and for longer than
synthetic
medication without  any side effects. A 100 gram serving of broad beans
including
the pods provide  about 250milligrams of L-dopa and in addition a
significant
amount of  proanthocyanidines. The broad beans seem to remain effective
even if
canned or  frozen, but should always be consumed whole as the pod has
been
found to have  the highest concentration of L-dopa. Medication may have
to be
adjusted if broad  beans are consumed on a regular basis". We can't get
whole
broad beans with the  pod, only frozen ones, but I'll be growing some in
the
garden this year. Since  adding broad beans to Geoff's daily diet  he
felt there
was some  improvement in the discomfort and immobility he experiences in
his
rigid left  arm and dragging left foot.

We live in England and heard about a man over here who was diagnosed at
least 10 years ago who has never taken meds and he works everyday at a
riding
stable. We hear he isn't doing too badly. The person who told us about
him says
he eats an awful lot of broad beans.

I also heard somewhere that the Pope ate a lot of mangoes which are high
in
a number of beneficial nutrients so thought I'd add those to Geoff's
diet.  We
go for long walks every weekend and I can say that since adding the
mangoes
he hasn't been dragging his left foot.

I did a search on the internet for "cure for Parkinson's Disease" and
amongst all the sites that said "there is no cure for Parkinson's
Disease" I  found
a few that claim PD CAN be cured! I've read with  interest what Raj is
doing
and taking for his PD, Geoff is taking  many of the same supplements, it
sounds
like the recommendations of an  Ayervedic doctor we found with this
search
who claims to cure 90 - 95% of his PD  patients.

A few days ago I came across a different slant altogether on
_www.parkinsonsdiseasecure.com_ (http://www.parkinsonsdiseasecure.com)
and we have
downloaded an ebook from there called 'Parkinson's Disease  The Greatest
Medical
Blunder'. Has anyone out there read this book? or followed  the author's
recommendations? He says there is medical evidence that proves what  the
cause and the
cure of PD is and he is of the opinion that drug companies  want to
ensure
Parkinson's patients don't overcome their disease so they will  have to
purchase a
lifetime supply of drugs that never actually solve the  problem.

Whether this is true or not, we are amongst the few people who have
chosen
not to follow our doctors advice...and so far we can't see any evidence
that
this is doing Geoff any harm. Other than the PD he is very fit, he has a
physically demanding job (exercise is known to be beneficial for PWPs),
eats a
healthy vegetarian diet and is now taking some supplements. I know it is
early
days, but this is our experience so far. You're not alone in wanting to
resist
the medication.

Ann

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