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In October 2004, a bill establishing The California Parkinson’s Disease Registry was signed into law by Governor Arnold Schwarzenneger. While it only involves California - it's an important beginning for a national registry for Parkinson's. "The California Parkinson’s Disease Registry is a first-of-its-kind system that will assess the number of people in a specified area with Parkinson’s disease. A.B. 2248 will require the California Department of Health Services (DHS) to create a Parkinson’s disease-specific registry and “conduct a program of epidemiological assessments on the incidence of the disease.” The law also encourages DHS to convene a unique task force comprised of scientists and Parkinson’s disease researchers as well as Parkinson’s advocates to provide support and advice for the implementation and funding of the California Parkinson’s Disease Registry. " California PAN coordinators Mark Seigel, and Greg and A..J. Wasson played a major role in getting this bill passed into law. see more about the California registry at: http://www.grassrootsconnection.com/grc_whatnew_CAregistrysuccess.htm http://www.grassrootsconnection.com/CA_PD_Registry.htm The Muhammad Ali Parkinson Research Center is also seeking survey participants to create a national database about living with Parkinson's disease. REad about it at: http://www.grassrootsconnection.com/M.Ali_PD_Registry.htm Participants can request a copy of the survey by calling 1-877-287-7122 or access it on-line at the MAPRC Web site: www.parkinsonregistry.org Linda ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn