 |
 |
Forwarded from Advancing Parkinson's Therapies (APT) PDtrials.org Bulletin - April 2005 Clinical Trial Information and News for the Parkinson’s Community Thank you for signing up to receive the Advancing Parkinson’s Therapies (APT) PDtrials.org Bulletin. This email communication provides information on Parkinson’s disease clinical trials that are actively looking for participants, as well as news of interest on research and treatments. April is Parkinson’s Awareness Month - send this email to a friend and spread the word! Please help us let people know about PDtrials.org and the Advancing Parkinson’s Therapies campaign – a great new resource brought to the Parkinson’s community by national Parkinson’s disease organizations (a listing of organizations is provided below). In this issue: Recently Added Clinical Trials on PDtrials.org Learn About The Many Types of Clinical Trials The New Advancing Parkinson’s Therapies Toolkit Become an Advancing Parkinson’s Therapies Campaign Partner! Trials Recently Added to PDtrials.org We now have information for 41 research studies actively recruiting volunteers on our website. Here are three recent additions to the site: Study of Antidepressants for Parkinson’s Disease This study examines the ability of two FDA-approved antidepressants to treat depression in people with PD, including how these medications affect the movement symptoms of Parkinson’s disease such as shaking (tremor), stiffness, slowness of movement (bradykinesia), and balance. http://www.pdtrials.org/trial_detail.php?trial_id=274 A Study to Measure the Sense of Smell in Relatives of People with Parkinson’s Loss of the sense of smell sometimes occurs is people with Parkinson’s disease (PD). This study will seek to determine whether relatives of people with PD also have a reduced sense of smell. This trial is conducted by mail, so people anywhere in the U.S. may participate. For more information, click here: http://www.pdtrials.org/trial_detail.php?trial_id=271 Study to Investigate if Stalevo Can Delay the Start of Uncontrollable Movements This study will investigate whether the drug Stalevo is effective in delaying the start of uncontrollable movements (dyskinesias) that are common among people with Parkinson’s disease. For more information, click here. http://www.pdtrials.org/trial_detail.php?trial_id=275 Learn About the Many Types Clinical Trials Many people think that clinical trials focus solely on testing new treatments, such as an experimental drug or a surgical procedure. In fact, there are a number of clinical trials that do not test new treatments for PD, but help scientists gain a better understanding of the disease. Some trials examine genetic or environmental risk factors that may increase the likelihood of developing Parkinson’s. There are also trials that examine the effects and management of the disease, such as speech treatment or the signs and symptoms of swallowing disorders. TIP: If you want to make a contribution to Parkinson’s research but feel uncomfortable about trying a new treatment, go to the Browse by Trial Type page on PDtrials.org. http://www.pdtrials.org/browse-type.html Here, trials are listed according to their research objectives. The Study of Disease category lists trials that do not test new treatments and may only require you to answer a questionnaire or give a blood sample. The New Advancing Parkinson’s Therapies Toolkit: Help to Educate and Inform Would you like to help educate and inform people about clinical trials and PDtrials.org? The Advancing Parkinson’s Therapies Toolkit has everything you need, including downloadable APT brochures, newsletter ads, a PDtrials.org web button for posting and linking your website, and more. Check out the APT toolkit today! And, if you would like print materials, please click here – or send an email to [log in to unmask] Become an Advancing Parkinson’s Therapies Campaign Partner We are excited to announce the creation of our APT Campaign Partner program! If your organization serves the Parkinson’s community, you may wish join forces with us in increasing awareness and education about clinical trials. There are a number of ways to get involved, such as distributing educational materials, featuring an APT booth at a local event, or being listed on the on the Campaign Partners page on PDtrials.org. Please contact us at [log in to unmask] to find out more about this program. APT is led by the Parkinson’s Disease Foundation in collaboration with the American Parkinson Disease Association, the Michael J. Fox Foundation for Parkinson’s Research, the National Parkinson Foundation, the Parkinson’s Action Network, the Parkinson Alliance, and WE MOVE. In addition, APT has a collaborative relationship with the National Institute of Neurological Disorders and Stroke, the Parkinson Study Group, and the Parkinson’s Pipeline Project. Our success depends on your support. If you know someone who would be interested in receiving information about Parkinson’s clinical research, please forward this email. Subscribe! If you have been forwarded this message and would like to sign-up for regular email updates from PDtrials.org, please go to http://www.pdtrials.org/email_notification.php. ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn