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Thank you for your thoughts. Dad has been taking Sinemet a long time. His predominant symptoms are mostly an overall rigidity, especially in his legs and although he does not jerk, his hand and arm movements are very exaggerated, very wide in their scope almost as if he is making sure to grasp or touch something by making a really hard-to-fail go at it. We have all learned to live with his physical condition, have a fairly workable routine, but I am really starting to miss his involvement in our conversations. I just wish I knew what was inevitable and what I should be working (researching, inquiring) to slow down or improve. While our family has learned to "go with the flow" there is always this little nagging voice urging us to try something more or different. I suppose this is a common way of reacting and dealing with a chronic condition that affects everyone in a Parkinson's sufferer's family. When to just manage and when to attempt to have an impact. Thanks again for yo!
 ur
 attention.

Rick McGirr <[log in to unmask]> wrote:Hi, Jann,

You can never know enough about the stuff you put in your body.

On side effects of PD meds, I understand that the drug that causes the
most problems in the long run is Carbidopa/Levidopa itself. Over
time, 5 to 10 years, it can cause wild, jerky motions and contractions
of muscles. It also loses its effectiveness, and dosages are
increased over time.

I was on the stuff for a couple of years, but being in the early
stages of the disease, and in an effort to maximize my useful years, I
went off C/L. It's been 2 or 3 months, and it is a bit more difficult
for me, but the small increase in symptoms is tolerable for now.

You should search the web for info on what particular purpose your
father's medication is supposed to serve. Different drugs do diff.
things. Carb/Levidopa helps reduce actual symptoms of PD. I still
take Selegiline, a neuro-protector, and Requip, which stimulates the
neuro-receptors in the brain. These two give me no problem at all,
but I have had significant difficulty with other meds causing
sleepiness.

Your dad's reactions may be totally opposite mine, and any changes
should be made in consultation with his doctors. Good luck, and
thanks for being there for your dad.

Enjoy Spring!
Rick McGirr
Email: [log in to unmask]


----- Original Message -----
From: "Jann Bell"
To:

Sent: Monday, May 02, 2005 8:42 PM
Subject: Citalopram


> I could sure use some advice on this drug. My Dad, 78 years old, who
has been diagnosed with PD since 1998 has only taken
Carbidopa/Levidopa for all these many years. He currently takes 2 -
100 mg tablets three times a day, plus 1/2 tablet of Simvastanin
(spelling?) for cholesterol. The latter drug was only introduced a few
months ago. Other than those two meds and an aspirin a day, we've kept
things pretty simple. I have been reading this listserv for several
years off and on and remember, especially, the drastic side effects
drugs can have on the PD patient that ordinarily might not affect a
person without PD. He sees a nurse practitioner at the Veterans
Adminstration here in Arkansas, and she, along, with most of the
doctors in this area know little to nothing about PD and have no
interest in changing that. So, the listserv is invaluable when it
comes to real life suggestions and observations.
>
> His nurse practitioner suggested Citalopram Hydrobromide, 200 mg
daily. I really am hesitant to introduce any new drug that cause bad
side effects IF MY DAD MIGHT AVOID THEM. However, I also notice, that
since PD affects everyone differently it might be an unavoidable
condition of having PD - namely, having to at least try everything
suggested and hope that not too much harm is done in the process.
>
> Any thoughts about Citalopram would really be appreciated. I also
mentioned to the Nurse Practitioner that Dad was starting to kind of
lose his ability to string words and thoughts together more frequently
but at other times had a pretty good command of his thought process
(possible Lewy Body Disease), She had no comment.
>
> Thanks for your time and consideration.
>
> Jann, caregiver to Dad, Jack, 78 yo
>
> --------------------------------------------------------------------
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