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I wasn't aware of lack of verbal skills, or reduction in conversation being a PD symptom. Can anyone corroborate? There are certainly long term sufferers on the list whom you could call 'chatterboxes'. It may be that your dad's situation is not all caused by his PD. Or do you think it's because of his physical difficulties that he refrains from talking by choice? Or is it because of loss of function in the voice box? Hope you don't mind the questions. I hope you've asked them yourself. Rick ----- Original Message ----- From: "Jann Bell" <[log in to unmask]> To: <[log in to unmask]> Sent: Wednesday, May 04, 2005 8:02 PM Subject: Re: Citalopram > Thank you for your thoughts. Dad has been taking Sinemet a long time. His predominant symptoms are mostly an overall rigidity, especially in his legs and although he does not jerk, his hand and arm movements are very exaggerated, very wide in their scope almost as if he is making sure to grasp or touch something by making a really hard-to-fail go at it. We have all learned to live with his physical condition, have a fairly workable routine, but I am really starting to miss his involvement in our conversations. I just wish I knew what was inevitable and what I should be working (researching, inquiring) to slow down or improve. While our family has learned to "go with the flow" there is always this little nagging voice urging us to try something more or different. I suppose this is a common way of reacting and dealing with a chronic condition that affects everyone in a Parkinson's sufferer's family. When to just manage and when to attempt to have an impact. Thanks again for yo! > ur > attention. > > Rick McGirr <[log in to unmask]> wrote:Hi, Jann, > > You can never know enough about the stuff you put in your body. > > On side effects of PD meds, I understand that the drug that causes the > most problems in the long run is Carbidopa/Levidopa itself. Over > time, 5 to 10 years, it can cause wild, jerky motions and contractions > of muscles. It also loses its effectiveness, and dosages are > increased over time. > > I was on the stuff for a couple of years, but being in the early > stages of the disease, and in an effort to maximize my useful years, I > went off C/L. It's been 2 or 3 months, and it is a bit more difficult > for me, but the small increase in symptoms is tolerable for now. > > You should search the web for info on what particular purpose your > father's medication is supposed to serve. Different drugs do diff. > things. Carb/Levidopa helps reduce actual symptoms of PD. I still > take Selegiline, a neuro-protector, and Requip, which stimulates the > neuro-receptors in the brain. These two give me no problem at all, > but I have had significant difficulty with other meds causing > sleepiness. > > Your dad's reactions may be totally opposite mine, and any changes > should be made in consultation with his doctors. Good luck, and > thanks for being there for your dad. > > Enjoy Spring! > Rick McGirr > Email: [log in to unmask] > > > ----- Original Message ----- > From: "Jann Bell" > To: > > Sent: Monday, May 02, 2005 8:42 PM > Subject: Citalopram > > > > I could sure use some advice on this drug. My Dad, 78 years old, who > has been diagnosed with PD since 1998 has only taken > Carbidopa/Levidopa for all these many years. He currently takes 2 - > 100 mg tablets three times a day, plus 1/2 tablet of Simvastanin > (spelling?) for cholesterol. The latter drug was only introduced a few > months ago. Other than those two meds and an aspirin a day, we've kept > things pretty simple. I have been reading this listserv for several > years off and on and remember, especially, the drastic side effects > drugs can have on the PD patient that ordinarily might not affect a > person without PD. He sees a nurse practitioner at the Veterans > Adminstration here in Arkansas, and she, along, with most of the > doctors in this area know little to nothing about PD and have no > interest in changing that. So, the listserv is invaluable when it > comes to real life suggestions and observations. > > > > His nurse practitioner suggested Citalopram Hydrobromide, 200 mg > daily. I really am hesitant to introduce any new drug that cause bad > side effects IF MY DAD MIGHT AVOID THEM. However, I also notice, that > since PD affects everyone differently it might be an unavoidable > condition of having PD - namely, having to at least try everything > suggested and hope that not too much harm is done in the process. > > > > Any thoughts about Citalopram would really be appreciated. I also > mentioned to the Nurse Practitioner that Dad was starting to kind of > lose his ability to string words and thoughts together more frequently > but at other times had a pretty good command of his thought process > (possible Lewy Body Disease), She had no comment. > > > > Thanks for your time and consideration. > > > > Jann, caregiver to Dad, Jack, 78 yo > > > > -------------------------------------------------------------------- > -- > > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > > > -------------------------------------------------------------------- -- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > > -------------------------------------------------------------------- -- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn