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TO: Life in Motion Coalition Organizations FROM: Judith Blazer, Executive Director, WE MOVE Dear Colleagues: The Life in Motion campaign launched with a press conference at the AAN annual meeting in Miami on April 11th. Thanks to all of you who attended the event!! You were among those who heard Drs. Jankovic, Bressman, and Olson explain to the media why the 40+ million Americans living with a movement disorder deserve early and accurate diagnosis and effective, up-to-date treatment. Geri Jewell, actress and comedienne, shared her personal story of living with spasticity related to cerebral palsy. She is just one of the millions of people who is living life to the fullest….and triumphing over her movement disorder. In conjunction with the press event, Chandler Chico Agency sent a Life in Motion press release to thousands of media outlets across the country. A video news release and public service announcement (PSA) are also available to the media. Early response to the release has been very positive and includes interest from numerous neurology and other medical publications and Web sites, as well as consumer media --People and Prevention magazines; Regis and Kathie Lee and The View television shows; and others. We will update you on these exciting opportunities during the second Life in Motion Webinar on Tuesday, May 3rd at 2pm EDT. Instructions for participation and an agenda will be sent to you at a later date. Campaign initiatives will continue throughout 2005 and will include additional media outreach, public service announcements, and community outreach that will highlight real stories of people living with movement disorders. We have been overwhelmed with personal stories from people living with movement disorders, especially dystonia, tremor, and Parkinson’s disease. If you are interested in contributing a story to Life in Motion, we encourage you to contact WE MOVE. In conjunction with the campaign kick-off, WE MOVE launched the Life in Motion online Resource Center at www.life-in-motion.org <http://www.life-in-motion.org/> and a toll-free number 1-866-546-3136. The Web site is designed for healthcare professionals and people living with movement disorders and includes information and support resources including… - Listing of Life in Motion coalition organizations with links to your Web sites - Downloadable fact sheets about movement disorders - Database of all national movement disorder advocacy groups and foundations - Downloadable brochure titled “Managing Your Life in Motion,” a practical tool to help patients more effectively communicate with their healthcare team We look forward to working with all of you as the campaign progresses and hope you can join us for the Webinar on May 3rd!! Sincerely, Judy Judith Blazer, MS Executive Director 204 W. 84th Street New York, NY 10024 T: 212-875-8312 F: 212-875-8389 ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn